Chemo ride…

… took a bitch turn. Dreaded day 5 passed (thank goodness for the amazing anti-nausea meds), but with the last bag of this poison/healing fluid, a fist immediately grabbed my chest and squeezed my breath. My cheeks coursed with blood.Terror, say the word, terror. So much back and forth, oxygen and treatments and more liquids through this purple spaghetti plastic that drip, drip, drips near my heart. I shook fiercely – rigors – the nurses said. I was stuck on the word as my molars hammered, rigors!, where is this hard ride taking me? The fluid was stopped with a promise not to start again until I knew.

In and out of a fog, a dream of a herringbone jacket with a pleated flair my youngest wore as a two-year-old. In the evening, a nurse sits with me. As the drip-drops begin again, she talks, right beside me, watching me, close eye, about this disease, about infection and rest, about what I will need to do and avoid – do not knick your fingers with a knife, no dirt, no cat litter, no flowers, no illness. I ease from tension and realize, yes, yes, I am still breathing, I am still taking in this toxin that quite possibly will save my life. I glance up at the round analog clock on the wall that reminds me and my brother of school days. These are the moments Burlington’s Phoenix Books is hosting the Almanac intro in an online event. In my haze, I imagine the Almanac editors and reading and answering questions, this book filled with farm dirt and blooming flowers, hay chaff and sneezing, insects and sheep, and stories – so many stories – of people working on this northern place on the globe. In my half-dream, exchanging novels to read with this steady stranger, I feel my place in the world opening up, both descending into the long trek of illness and healing and, miraculously, an upward course, too, as this illness strips me down. Your bone marrow, the stranger says, marrow, a word I love and have been content to let lie, bone marrow doing its bone marrow thing. All this is changing, too, from nature, from medicine, from my fierce intent to reclaim my body.

All of you who have traveled or will travel this journey, bone marrow and rigors and fear, how simultaneously far and yet close this feels, all of us.

….. Everyday, a dear friend texts me a poem read in her clear strong voice. Here’s Rilke’s “Let Darkness Be a Bell Tower”

Quiet friend who has come so far,

feel how your breathing makes more space around you.
Let this darkness be a bell tower
and you the bell. As you ring,

what batters you becomes your strength.
Move back and forth into the change.
What is it like, such intensity of pain?
If the drink is bitter, turn yourself to wine.

In this uncontainable night,
be the mystery at the crossroads of your senses,
the meaning discovered there.

And if the world has ceased to hear you,
say to the silent earth: I flow.
To the rushing water, speak: I am.

Sonnets to Orpheus II, 29

Hay strands for sheep, purring cat, Harry Potter chocolates for neighbors.

Now in my fifties, I’d lulled myself into believing my risk-taking days were sewed up: those early 20s of getting in the old Volkswagen for journeys of thousands of miles, buy a decrepit hunting shack and convert it into a home, severe a marriage soured terribly and fear he might take your life in retribution — all that time of selling the maple sugaring equipment (who to trust, how to cut a hard deal?). So jaywalking suited me just fine. Waking long before dawn to feed the cats and drink milky coffee, write and watch the sun rise, that streaming beet juice.

As if I held all the cards in the risk-taking plans, anyway. Now that thread of riskiness has spread to those beloved around me, too. More and more, I understand my learning to craft a honed a sentence or the deep pleasure of watching a cardinal pause on a branch, are my steadying rituals of rooting me meaningfully in this world. I have friends whose lives center around sheep and chores and woolly affection, in ways that transformed their lives. Chicken and horse lovers. My sister-in-law with her two goats.

As I write from Room 101, I haven’t forgotten that the world spins on. Last night, I listened to VTDigger’s Dave Goodman’s follow-up conversation with Elizabeth Price, mother of Hisahm Awartani, one of the three young Palestinian men who was shot in Burlington, Vermont, a year ago. The Gaza war reigns. The American presidency shifts.

In Room 101, so many stories of people come my way — the night nurse who studied for two years in England, near the beach, transcontinental; how transport folks and nurses made their to live in New Hamsphire and Vermont, often from places around the country. What do you like here? What have you found? I keep asking, curious to know what roots people in their lives.

The smaller world spins on, too, with its things both miserable, joyous, and pleasurably mundane. Your own rituals of offering hay to sheep, fingertips to a cat’s purring head.

Last day of November, the month of cancer in my world. A year ago I bought Harry Potter chocolates for the neighbors’ boys and waited in the dusk for the three laughing boys to appear around my woodpile. The Good Doctor tells me I will go down, down, soon, and then rise to where I once felt well. What would that mean? I’m hanging on to this unrealized promise.

I repeat. When I go down, I will re-emerge.

Cancer, Election.

In 2014, my sister was diagnosed with cancer (now healthily in remission), and I read The Emperor of All Maladies: a biography of cancer by Siddhartha Mukherjee. My marriage also fell apart that year, and I remember reading this fat library book in my car at school pickups, waiting for a job interview in Burlington, on benches waiting for court appearances. It’s a hefty book, with a lot of reading hours.

Three weeks into this flipped-upside-down world, my former life is already receding. I’ve been so surprised and grateful for the effusion of calls and emails, friends stopping by with food and gifts and simply to talk, to share news of their own world and listen to mine. I realize now how carelessly I had ebbed into a cynical place these last few months while the cancer was growing in me, weakening me.

Sure, it’s true that people sometimes give into the uglier strands of lying and cattiness and gossip, of insecurity and strange ways of playing people against each other — and sometimes engage in far worse things. In my Shire of Vermont, I see my decent state struggling with what’s playing out in national politics — and the looming threats. Which made me think, again, as I lay in bed listening to the rain this morning, how our individual lives reflect the greater society. Don’t waste your few days on junk and despair, those adolescent tricks. And thank you, all, for surrounding me with such light.

From Philip Larkin:

What are days for?

Days are where we live.   

They come, they wake us   

Time and time over.

They are to be happy in:   

Where can we live but days?

Lantern Light.

My immense thanks for so much kindness and light sent my way this week…. It’s meant the world to me.

When my daughters were in a sweet little Waldorf nursery school, around this time every year the children made lanterns from canning jars covered with colored tissue paper. The whole school gathered for a vegetable stone soup and then set out for a walk with the lanterns. This is rural Vermont, remember; the nursery school was surrounded by forest and the deep night, and parents carried lighters and matches to relight anyone’s lantern that was snuffed out. In the dark, stumbling a bit, we walked, singing.

Martinmas. I was tugged right into the Waldorf world with its heady folklore and mummers plays, the stories within stories, my natural bent of mind.

A week into the cancer world, veritable novice, walking on November 11, I was thinking of all these powerful layers — Martinmas and Armistice Day and Veterans Day (after WWII and the Korean War) — and the hidden interconnectedness of so many things, String Theory, the magical enchantment of books with stories that seem disconnected and then — whoosh! — are magically revealed at the end.

Maybe this is only my own way of thinking of things, but this uninvited and unwanted cancer that has now joined my body and story could hardly be random. Here I am, on the edge of a journey of indeterminate length, still looking to put these hard pieces together.

And for November, with her lovely gloaming light, a few lines from Adrienne Rich:

… You’re what the autumn knew would happen
after the last collapse
of primary color
once the last absolutes were torn to pieces
you could begin

How you broke open, what sheathed you
until this moment…

Abrupt turn in the story…

Photo credit Jo Dorr

For the past few months, I’ve wondered if I might want to take a different direction with my blog (head to Substack?, become more politically local?), but this blog will change, unbidden by me.

Monday, my daughter took me to the ER for severe abdominal pains. An elevated white blood cell count made the nurse reappear with bottles he filled with my blood and gave me the heads up that I might not be headed home that night. I was wearing my twenty year old Danskos and a wool sweater I’d knit years ago and have worn to felt. Slivers from the firewood I’d brought in were hooked on the sweater. My younger daughter and the older daughter’s boyfriend appeared. My girls texted my brother. The nurse kept coming and going, talking to me and my daughters.

I lay on my back for hours with very kind people around me, who gave me pain meds and noted a soaring fever. The ER doctor returned with the nurse who leaned against the cabinets. It was the briefest thing, but when the nurse walked in he looked deeply at my daughters and then at the floor. I knew then that I was not going to like what the ER doctor was about to tell me about that CT scan.

So, on election night, hospitalized with scepticemia from the cancer, a traveling nurse told me about the beaches in Alabama where he lives while he tidied up needles and tubes in my arm. We followed that up with a long conversation about housing costs. Home again on this frosty and promising-to-be-sunny morning, I’ve been humbled by the gifts of visitors and food and kindness that have poured into our little family house, which made me see what a shadowy unhappiness had been creeping into my being for these past few months.

With the hospital and my brother, a biopsy at Dartmouth was pushed. Things will change rapidly. In the meantime, I’m doing things like putting my electric bill on autopay and arranging immediate work leave. But more profoundly, this: this week centered me right back to who I am — mother/daughter/sister, friend, writer — and conversely narrowed and widened my lens, hammering home that day by day is where we are.

The other afternoon, my daughter Molly ran in the house and told us to hurry out to see a rainbow. November rainbows in Vermont are rare, indeed — rainbows in late fall of this glossiness and color even more so. I saw this as a harbinger.

Last, I was reminded of one of my favorite Jack Gilbert Poems, “A Brief for the Defense.” A few lines read:

… We must admit there will be music despite everything.
We stand at the prow again of a small ship
anchored late at night in the tiny port
looking over to the sleeping island: the waterfront
is three shuttered cafés and one naked light burning.
To hear the faint sound of oars in the silence as a rowboat
comes slowly out and then goes back is truly worth
all the years of sorrow that are to come.

The world, keep on keeping on….

The young barista in my coffee shop muses with me about the small pleasures of November: the summer slam of tourists quieted, the sudden simplicity of stillness. On a balmy afternoon, I head out in search of places where I’ve loved and been loved, the sunny afternoon so warm the crickets have struck up their chorus again.

A few days later, I’m in the diner, eating breakfast with a friend whose mind works along my hard-bitten lines. Our booth’s window looks down into the river where the patched-up cement walls have fallen flat. We are in absolute agreement that this shifting world of thoughts and opinions, all the junk fed by media and social media, come to naught. It’s action that shifts the world. And the world, despite our fears, will keep on keeping on.

I put poetry as action, too. Here’s a few lines from the incomparable Mary Ruefle’s “Glory.”

... I met a psychic who told me my position in the universe
but could not find the candy she hid from her grandkids.
The ordinary fear of losing one’s mind. You rinse the sink,
walk out into the October sunshine, and look for it
by beginning to think. That’s when I saw the autumn aster,
the sedum blooming in a purple field. The psychic said
I must see the word glory emblazoned on my chest. Secretly
I was hoping for a better word. I would have chosen for myself
an ordinary one like orchid or paw...