lymphoma

The contours of your heart…

/ Brett Ann Stanciu / 8 Comments
Not February, a long time ago, at our house…

Prying an aluminum safety-seal off a bottle, I remember drinking a tiny plastic bottle of cherry-red juice as a girl when a soft piece of aluminum was the top: once you peeled it back, you were committed to drinking the whole thing. In our sugar-free house, we rarely drank sweet things. This was somewhere in that vast expanse of the Midwest, land of a long-ago sea. In our parents’ green Jeep, we hurtled along I-80, two kids in the back and another up front in the middle between my parents. The Jeep had no radio. In a fit of enthusiasm, my mother had bought a transistor radio that she insisted would work. My dad insisted it would not, despite my mother unrollling the window and jamming the antenna into the wind. (The radio did not, although she did play music at a campground picnic table. We insisted she turn it off: too suburban, mom…)

In the floor of the Jeep’s backseat compartment was a hole where a screw must have fallen out and disappeared. In these pre-seatbelt years, we sometimes lay on the hot floor and stared down through the hole at the interstate whizzing beneath the wheels. A steady blow of hot air blew upwards.

Midwinter now in Vermont, that eternal season of accumulating snow and intermittent dazzling sunlight. My parents, bickering or laughing in their front seat domain where the three of us kids were clearly only intermittent visitors, were enmeshed in their crazy lives, scooping us along in their journey. As for us kids, the void of that quarter-sized hole in our family car and the pleasure of those unexpected sweet drinks, the promise, perhaps, of a swim in a campground pool later that evening, defined those summer days.

Now, decades beyond that cherry drink, I see my own rugged journey spanning decades, my daughters always along and still along, as we’ve come together and parted and reunited with so many people over these years…. In the end, perhaps, what remains with a child might simply be that special drink, not the mighty panorama of ancient geology or the American landscape of truck stops and diesel fumes and KOAs, not even my parents’ own struggles to figure out their lives — where are we going? what are we doing? — that, in my parenting turn, I’m hammering out, too.

From the inimitable essayist Leslie Jamison: “Don’t assume the contours of another person’s heart. Don’t assume its desires.”

Born in 1933…

/ Brett Ann Stanciu / 14 Comments

William Maxwell writes in his riveting short novel So Long, See you Tomorrow: “The reason life is so strange is that so often people have no choice.”

This strange world, indeed. My daughter drives us up Vermont’s long loneliness of I-91, the interstate running above the river. Villages are tucked into the blue and snow-sprinkled mountains, these tiny clusters dominated by spires of white clapboard churches. This has been a week of in-and-out of ERs and hospital rooms, of resurgence in energy and a low so low I’m unable to bother to speak. Now, the ride home, the passing through of this winter country, where the new snow (so pure white) piles high on tree branches. This northern land in midwinter is territory I know with a familiarity akin to the veins on the backs of my hands. A haven of cold, often slow-going, a muted palette of pale blue, sooty gray, evergreen nearly black.

We talk until we’re spun out from chatter. I lean my head against the cold Subaru window. In the last room where I stayed, my companion was a woman born in 1933. 1933 marked the end of Prohibition, the year stenciled on the green-glass-bottled Rolling Rock beer we drank in college. 1933, the year of Roosevelt’s New Deal. The woman’s voice was clear as a spring stream, often studded with small wry jokes. When she saw me, her face glowed in a smile. Of all the things I’ve learned from this week and scribbled into my notebook, this woman’s radiant smile and easy language sticks with me. A few times, I wandered her way, hoping to have some of her joy rub my way.

Tiny flames, ice.

/ Brett Ann Stanciu / 18 Comments

Bootstep by bootstep, my strength begins to return. It’s cold, darn darn cold, slicing at my eyes and cheeks. The cold and I are no strangers. I made maple syrup for years in an unheated outbuilding, raised my daughters in a house with scant heat, have spent decades of my life tromping beneath snowy trees in search of…. what? The usual things I suppose, by which I mean the unexpected. Or maybe just the sheer loveliness of a fresh snowfall.

Here’s my barometer for how I know I am improving, the cancer lessening. A long ago college friend appears at my house with the flu, explaining away his symptoms. At first, I don’t understand; what is he asking me? My old moxie rears up, fueled perhaps by the Red Devil chemo drugs. I’m taking in a poison to save my life, after all. As if it’s not enough to have cancer, I had to send him away, banish him from our hearth, point that what, whatever he thought he might be doing had nothing to do with me at all. It was all him. At this precise moment, there’s no space here for that, or for the flu.

Later that night, neighbors appeared with ice lanterns made from five-gallon buckets. I grabbed my coat and stood outside, talking, while they lit beeswax candles and shared news of town. When they left, the tiny flames glowed brightly in the starless night, sure evidence that fire can burn even surrounded by fat ice.

Vessels, Rooms, the Unbounded Sky.

/ Brett Ann Stanciu / 15 Comments

16 degrees on this sun-kissed Sunday, my cat considering the squirrels.

In cancer land, still putting my muscles together, I’m outdoors only with someone else these days, the long solitary walks yet a future promise, again. Early mornings, I brew coffee, fill the cats’ bowls with their breakfast. All day long, we’re filling and emptying things: water glasses and soup bowls and cat dishes (again), filling a notebook page with penciled words, a suitcase with my daughter’s clean clothes as she heads back to college, a new lightbulb in an empty socket.

Likewise, this disease has filled my body for months, now emptying; illness has slipped into every crevice in my family’s life, too, like the power of freeze in a river, rearranging the flow.

In a year that’s begun with so many families losing their homes on the other side of the country, the sunlight on this morning, a chilly walk this afternoon, the cold scraping at my cheeks – yes, yes – a scrap of gratitude for January Vermont sunlight. Here’s line from one of my favorite writers, Andre Dubus, who knew loss keenly.

“We receive and we lose, and we must try to achieve gratitude; and with that gratitude to embrace with whole hearts whatever of life that remains after the losses.”

Pig farm, glass buildings, moss.

/ Brett Ann Stanciu / 14 Comments
Photo by Molly S.

The man who swept and cleaned my room at Dartmouth-Hitchcock lives in a nearby farmhouse where he grew up. All this complex here, all these buildings, he says, unrolling trash bags, was once a pig farm. Marooned in bed, IV-ed with multiple lines, I ask questions. His family raised beef, milked, had sheep, their own pigs, a chicken-and-egg empire run by the family women.

We talk food – garden canning, slaughtering and freezing, how his mother’s cookstove had a can of grease they used for eggs, steaks, day-old biscuits. That stuff in a box we eat now, with too many ingredients, that’s not food.

We get to gravy recipes, boiling water and how much flour to paste in. Then we wish each other well. Done for the day, he trundles his cart down the hall.

Home, I’m less cloudy for a few morning hours. By afternoon, the cats and I retreat to lying down, reading, slipping in and out of sleep, where I dream of an enormous pig farm where those tall glass buildings now tower over the surrounding woods. I dream myself back to early girlhood, sick, sick, playing paper dolls in bed. I weld my paring knife, skinning a Chioggia beet. For one long piercing moment, I ache to pull on my jacket and boots, slip wordlessly out the door and along the brambly path – a solitary walk to clear my mind. How I’d relish stepping from frosty twilight into my warm house. Patience, patience: my lesson now.

Friends text photos of sunsets, lakes, moss, running streams. Cell phone photos once so common to me, I study these, proof of a winter day. Mail arrives. Half insurance bills, half gorgeous cards – flowers, a paper wreath, snowy mountains – and so many welcome words. Late afternoon, I cook a pot of rice, my first contribution to a meal in weeks, save setting out forks and spoons like a toddler.

I like the juicy stem of grass that grows

within the coarser leaf folded round,

and the butteryellow glow

in the narrow flute from which the morning-glory   

opens blue and cool on a hot morning.

– Denise Levertov

December, Holy/Unholy/Holy Season

/ Brett Ann Stanciu / 10 Comments

Anyone who lives in a northern climate must inevitably come to some reckoning with the descent into this month’s darkness, the steady whittling away of daylight at either end, noontime oftentimes scrubbed to a soapy haze.

To my surprise, this month began on an ascent for me, an elevator rise at the end of November, crammed into a silver metal box on a gurney with my weeping daughters and brother, and an anesthesiologist who might have drawn the short straw to collect the patient in the otherwise sleeping hospital. He was actually assured me he was a much better anesthesiologist than a gurney driver. Bring me back safely to these people, I pleaded.

Here at Dartmouth, I’m in a major medical facility (of which I’ll someday write much more). There’s no illusion that this is giant Health Care. Within this, my tiny 4’8″ body and the fraughtness of grave disease and uncertainty, and so so many patients. Yet all these interwoven days and nights, I’m surrounded by an arch of kindness, by skilled and unskilled staff who labor so patiently. I’m humbled by this secular holiness. The respect is repeated among colleagues here, aiding each other (and all us needy patients) with their own thank you, thank you as they work together.

A friend, driving home to Vermont from family Thanksgiving, leaves me Time of the Child by Niall Williams. Late into the night I read, taking these hours to relearn the slow joy of novel immersion. Sleep, sleep, I urge myself, and yet Williams’ world entrances me. Here’s line from this novel that an elderly Irish country doctor remembers from his doctor father: “The sick are ourselves, was a thing his father had said. When you stop understanding that, take your name off the wall and throw your bag in the river.“

…. Whatever way this month transpires — for rise or for misery — and it’s all holy, isn’t it, this sacred and profane mixture of spirit and blood and bowel. The journey itself we take together is the gem.

Although I will say, I was ineffably joyous to return from that dismal night and see my curved-to-exhaustion people. After all, I am in the only one in our household who devours the cold leftover French fries with gusto. Why would we waste cold potatoes?

Thank you again, all.