Nurses.

If you don’t know nurses, you will, or someone you love will. In my past year of cancer-and-chemo appointments, of those dozen hospital stays, in variations of days to weeks, the nurses were my very best friends. Nurses cajoled me to eat chicken soup and drink water (even a sip, just try); they were kind to me and looked out for my daughters. They taught us the ropes of the hospital ship: the habits of doctors and surgeons, how to adjust a bed and order food, find the light switches, turn up the room’s heat, find warm blankets. They offered orange juice and sandwiches to my daughters and hotel vouchers. The nurses told me I would live.

Nurses taught me about IVs, how not to bend my arm, what downstream occlusion meant, and when I must absolutely ring immediately for a nurse. They helped me to shower when I couldn’t stand, and never laughed when I said I forgot I had no hair. But they did tell funny stories and made me laugh. When I had a terrifying reaction to a chemo drug that was absolutely necessary for me to endure, a nurse sat with me for hours.

There was that terrible ED visit when I couldn’t stop throwing up from pain, and I was too weak to talk, and the nurse stayed long after his shift ended, holding my hand while I cried. There was yet another awful stay in the ED, those three nights in the room with the beige metal walls and the heat that wouldn’t turn off, and the nurse and the MD together figured out a pain med plan that brought me back to my body, that made the cancer bearable again.

Another nurse helped me get discharged on a spring day when I pleaded to go outside and see the apple blossoms, to have sunlight and wind on my face; she arranged for my daughter to sit with me on a bench and sip hibiscus tea, and she arranged for the hotel room where I slept all afternoon and then traveled in the morning across the road again, back to the cancer center for more chemo. She did this to help me heal. The chemo nurses tend the frail and the hopeful, the recovering and the dying. I had no port, so my arms were bruised and scabbed from months of sticking, and these fine nurses turned my forearms over and over and never failed me. Who in your life never fails you? They took such care.

I could write on and on. The nurse that first visit to the ED, who knew from a scan that I had metastatic cancer before I did. He walked in my room and looked at my daughters with such compassion. We did not know, but he did. He knew the hardship that lay ahead of my dear daughters.

The nurses, unfailingly, cared me as one of their own. I have notes in my journals, names and stories of strangers who cared so tenderly for me and my daughters, but really what I have is gratitude, admiration, and such sorrow for the unnecessary murder of one of our tribe.

Call It Madness

My newest novel’s advance copies arrived in a great big box at the post office that I hefted on my shoulder. The postmistress said, “You wrote another book? How cool is that.” Indeed. Then she wondered if I could carry out this box that she described as nearly large as myself. I laid the box on the passenger seat and then walked across the street to the co-op where I bought an orange and peeled it and ate the sweet sticky fruit in a drippy wet snow.

Call It Madness? A novel about a young woman who realizes her mother had spun lies all her life—a grandfather who hadn’t died, a beloved house that hadn’t sold, only tumbled apart with rot and rodents. How does she get out of the madness-making of family and salvage some shreds of happiness?

June 30 the book will be released from Regal House Publishing. You can find it at my beloved local bookstore, the Galaxy Bookshop, or from the big A here.

Here’s the opening page….

White Quartz

2016

I didn’t know what made my parents drive from Bellingham to faraway Vermont the summer I turned four. I had never met my great-grand-father Opa until that afternoon my mother rolled our station wagon down Breadseed Lane. Earlier that day, a stranger had helped my parents change a flat tire on the New York turnpike, but the spare was a misfit. For hours, our car had been thumping while I stared through the backseat windows at the trees and fields passing by, pondering the puzzle of that strange word breadseed. Could seeds blossom into loaves?

We hadn’t stopped for lunch, and I was hungry. Was this Opa character cooking us dinner? Turned out, he was not.

In a rain that was just beginning to let up, the old man stooped in his yard beneath an enormous pine tree, fists curled behind his suspender buckles. I was not quite yet four, remember, and I knew suspenders only from picture books. In a strange coincidence, I had asked my mother for a pair the last Christmas. She had laughed and said suspenders only existed in fairy tales about grandfathers who were woodcutters and chased away starving wolves.

I loved that trip so much that the next summer I begged to return to Opa and his house that smelled of sugary rotting apples. I whined, Please, Mama, please. Which apartment we lived in then I’ve long forgot-ten, but in my memory, I’m sitting on the floor. At the end of the galley kitchen, a glass door streams in cloudy light. I’m watching the hem of my mother’s skirt graze her bare knees. The polyester skirt is one she wore for years, zigzag black lines over white. The hem has opened and hangs down, its frayed edge unraveling into threads. She’s smoking, the cigarette held impatiently in her teeth, and ashes drift down in the murky light. That morning, my mother tells me that Opa died soon after we left. The house was sold.

Landscape, Here, There.

Late afternoon, the January darkness chasing away the chickadees at the window feeder, a friend phones about a film at a nearby arts center. Turns out, the film is about the broken-upness of relationships in America. Post-lymphoma, post-chemo, my energy by day’s end is something I can cup in one hand, a diminishment never illuminated by a nap. Grateful for the nudge and the company, I fill my woodbox, feed my cats.

It’s been a day of plenty here—of yoga and work, of slush on the roads and mush falling from the sky, a softness that threatens to harden overnight to ice. Midafternoon, I drop my car for an oil change and open my laptop in the waiting room. A stranger sits down in the otherwise empty room and drops his tablet on the table between us. I’ve kept much of this blog off the political realm, although surely any reader perceives my alignment is not with the aggressor in power. The stranger begins talking in a way that’s not angry but maybe more mystified about what’s happening in the country, the prohibitions about who can come in, with real consequences.

He’s newly retired. When I ask what he did for work, he says you don’t want to know, but oh I do, and so he begins unspooling his life. He worked for the fed’s immigration service. Military service, 19 nineteen moves, a residency in Germany during the Cold War, four grown children, one of whom is estranged. He says again, as if baffled, she kind of went nuts over this Trump thing.

The windows reveal spitting snow. He’s at a crossroads, that weighty retirement time. What will he do now? He says he’d like to put his hands to some good, maybe a Habitat for Humanity project. I close my laptop. He grew up in very rural Vermont, and he shares an accident that happened to him as a teenager, how it defined his life. Midafternoon, the light is as sooty as twilight. As a writer, I’m always looking for junctures: which way will a character act now? But I know, of course, that we meet crossroads every day. Crab at the post office woman? Curse the town snow plow driver? And I know well my own fallibility and hesitation. But I also understand how our lives and choices are enfolded into our culture and nation, that, as we live by the law of gravity, we live also by the constrictions of time and place. As for the country…. an immense crossroads. A collective atlas is under dispute.

Driving home in the snow that may or may not amount to much besides a dusting of ambiance, my friend’s son phones from a Texas freeway, lanes choked with rushing traffic. My headlights slice through the darkness. On either side lie hayfields, snowed in for the winter. The stars are swallowed in dense clouds. A year ago, another phase of terrible things that happen to cancer patients was barely beginning in my life. I didn’t yet know that there would be so many rushing drives down the icy interstate to the ER, all those grim hours when my daughters and I wondered which was this was going to shake out. Disease is a fierce and demanding instructor. The first lesson I learned, as I smartened up quickly, was to ask What’s real? What’s happening? even when I didn’t want to know the terrain of the landscape.

Because here’s something else that’s true. In the day-to-day trenches of adult life, there is… no such thing as not worshipping. Everybody worships. The only choice we get is what to worship…

Look, the insidious thing about these forms of worship is not that they’re evil or sinful; it is that they are unconscious. They are default-settings. They’re the kind of worship you just gradually slip into, day after day, getting more and more selective about what you see and how you measure value without ever being fully aware that that’s what you’re doing. And the world will not discourage you from operating on your default-settings, because the world of men and money and power hums along quite nicely on the fuel of fear and contempt and frustration and craving and the worship of self. Our own present culture has harnessed these forces in ways that have yielded extraordinary wealth and comfort and personal freedom. The freedom to be lords of our own tiny skull-sized kingdoms, alone at the center of all creation. This kind of freedom has much to recommend it. But of course there are all different kinds of freedom, and the kind that is most precious you will not hear much talked about in the great outside world of winning and achieving and displaying. The really important kind of freedom involves attention, and awareness, and discipline, and effort, and being able truly to care about other people and to sacrifice for them, over and over, in myriad petty little unsexy ways, every day. That is real freedom. ~ David Foster Wallace

Making Effort

Under the waxing full moon, January’s hungry Wolf Moon, I hurry along in the few degrees above zero. I’ve forgotten my scarf, so when I turn and lean into the wind, I cover my cheeks and lips with my mittens and breathe in the scent of wool. It’s too cold for wetness, yet my mittens are redolent with sheep.

The wide sky and the fierce cold winnow me to shivering bones. Nonetheless, I walk further than I’d planned, thinking through a piece of writing, and then, so cold, words abandon me for images, then those, too, vanish, and it’s me in my boots and that good down jacket and the mittens just beneath my fluttering eyelashes, and intermittent pickups passing, their drivers lifting their hands silently.

My life flickers as a candle flame in my curved ribs. What great fortune to be walking along the earth’s curve as the planet bends into twilight, the ancient moon electrifying the new snow. By the time I return to the village, it’s not long after five and the darkness has settled in for the long go of the night. Nonetheless, it seems to me these wintry days are gradually lengthening. I mail a letter at the post office and then talk with an acquaintance for a few minutes in the co-op, a waxed bag of curry power in one mitten, an onion in the other. At the last moment, I remember to buy milk for the morning’s coffee.

Winter. This starkly elegant season, straight-forward, no fussing around. A librarian friend passed me Andrew Miller’s The Land in Winter, a novel I’d longed to hold and read. A book of my soul. My cat Acer, eight-years-old, has discovered the pleasure of purring. We lie stacked on the couch—me, this tabby, library book—content. Who knew this was possible, my slow learner cat, my slow learner self?

“And though he was not much given to thinking about love, did not much care for the word… it struck him that in the end it might just mean a willingness to imagine another’s life. To do that. To make the effort.”
― Andrew Miller

Another Plot Point.

A friend inquires if my summer’s adrenaline, the post-chemo and post-surgery and cancer-remission wave of energy has waned, and, indeed, that has, the winter and cold and what’s called fatigue but is actually a lifeless bleak plain setting up quarters in my household.

Winter is a reckoning time. In a strange kind of way I begin to see the pieces of my life jostle into a pattern — childhood and college years and those years in my twenties when I ran back and forth across the country and then to northern Vermont, how I built a marriage and house, the young mothering years of children and friends, how we taught ourselves to sugar and run a business and I taught myself to write. Then I broke that life apart and took the children, created a new life, kept writing books, learned to view the world askance to keep danger from our door. Danger slunk in anyway. The world, indeed, is cause and effect, not a linear straight-shot but a dense sphere. Surely the human story is the same for you and me, with its endlessly profound and terrible and awesome variations.

This morning, the harsh cold has relented, just the slightest, snow sifting down, the blue dawn pushing away the night’s darkness.

I’m encouraged to seek “protective factors” which I glean as my daughters’ merriment, a purring cat on my chest as a I read by the woodstove, a walk with a friend on a snowy road. My heart longs for the season of those #10 Pond swims, with friends or without, the sun hot on my bare knees. Spectator to the loon world. Not iced coffee but hot coffee. Now, these days of small light. In a considered burst of optimism, I mail a carpenter a check in a card with snowy evergreens and seal our agreement. Come when the weather splits and put two more windows in my house. Open the view of the valley and the village. Another plot point.

What would people look like

if we could see them as they are,

soaked in honey, stung and swollen,

reckless, pinned against time? — Ellen Bass

The Scythe, the Past.

Twilight, 25 degrees yesterday, the temperature dropping, I’m walking back and forth by the town garage, a tumbling-down quonset hut beside the town’s towering sand pile. Such much winter yet to come. On the snowy road, I pace back and forth, watching the sky turn from blue towards black, the stars hidden behind the clouds, talking with my friend about family and politics. Listening, I remember the Christmas manicotti she brought me last year. My daughter and I ate that delicious meal at the kitchen table; through our glass doors, I watched the snow fall, wondering if I would live another year.

Another year is not a guarantee for a single one of us. Another lymphoma lesson. I’d woken that morning with that now-familiar fatigue, as though sandbags were tied to every bone in my bone, pulling me earthward. I fed the wood stove, drank coffee, rallied and did my writing, rallied again and pulled on my coat and boots and left the house.

Later, by chance, at an outdoor fair I see a woman I’ve known for many years, who was part of a trying time in my life when my daughters were young. She offers me a particular kindness, and I thank her, wondering what I’m supposed to say. She does not seem to expect the standard answer of all’s well, that’s over and done because of course any fool knows, once cancer has rooted profoundly in a body, the reaper’s scythe does not hide. By now, it’s not so much the scythe that frightens me, it’s the suffering to get there.

On my way home from the fair, I pull over and get out of my car. The sun shines brightly, but it’s freezing, and I’m shivering. I walk back down the dirt road that’s empty of everyone, not even a crow perched in a bare-branch maple. Far up the valley I see enormous white wind towers, the Lowell Mountain Project. To my left is a house where one of the leaders of a group that protested the towers now lives. When the tower project began, my then-husband joined that protest group. The experience broke my naive love affair with Vermont and my blind faith in that too-hard-used word community. Not so long after, the husband and I divorced. My life went on, and I became intimately familiar with my own fallibility, my own deep pockets of untrustworthiness. I devoted two years of my life to writing and publishing a book in atonement for my own callous actions. Which never changed the consequences but widened the story. Then, cancer — the plot turn.

Robert Frost, no stranger to suffering, famously wrote that everything he knew about life could be summed up in three words: it goes on. Standing alone on that roadside, I imagine myself as the mangiest cur, footsore, half-starved, near mad. Disease may yet be rising within me. If not now, perhaps soon, perhaps never. This hillside above the Black River valley will endure long beyond my bones and flesh, long beyond yours, too. The sun and wind cut into my eyes. Why do I refuse to remember my mittens? Rather than letting all this go, I stuff these stories back into my heart and trek back to the village. I’m not finished with any of this. I’m still following the strands of all these stories.

…. and last, Rick Agran of Bon Mot has kindly invited me to his radio show at 5 p.m. EST tonight…