Vessels, Rooms, the Unbounded Sky.

16 degrees on this sun-kissed Sunday, my cat considering the squirrels.

In cancer land, still putting my muscles together, I’m outdoors only with someone else these days, the long solitary walks yet a future promise, again. Early mornings, I brew coffee, fill the cats’ bowls with their breakfast. All day long, we’re filling and emptying things: water glasses and soup bowls and cat dishes (again), filling a notebook page with penciled words, a suitcase with my daughter’s clean clothes as she heads back to college, a new lightbulb in an empty socket.

Likewise, this disease has filled my body for months, now emptying; illness has slipped into every crevice in my family’s life, too, like the power of freeze in a river, rearranging the flow.

In a year that’s begun with so many families losing their homes on the other side of the country, the sunlight on this morning, a chilly walk this afternoon, the cold scraping at my cheeks – yes, yes – a scrap of gratitude for January Vermont sunlight. Here’s line from one of my favorite writers, Andre Dubus, who knew loss keenly.

“We receive and we lose, and we must try to achieve gratitude; and with that gratitude to embrace with whole hearts whatever of life that remains after the losses.”

Three things of varying importance…

Because I’m writing from Vermont, first, the weather: cheek-slashing cold, furious wind.

Second, back at Dartmouth these past few days for a consult and an infusion. Checking in, my insurance card was denied. Denied because it’s January and the new year wasn’t set correctly, or denied because some system is broken? I imagine these numerous co-pays, from ninety-cents to $750, piling up in my electronic portal. I’ll kick that to Monday, begin to straighten that out then…

Halfway through my treatments, the Good Doctor gives me the heads up about what’s to come, including the shift from what I’m calling Cancer Land back to the Everyday World. Although I’m sure he hears this repeatedly, I say how otherworldly is this cancer journey. Rarefied isn’t precisely the word I’m looking for, as so much of disease isn’t lofty or grandiose but mundane and sometimes miserable. But the journey is like nothing else I’ve undertaken, laced through at times with impending death, elevating the stakes to the utter center point of what matters. There’s nothing trivial here.

Third (and certainly not last), I’m so grateful for the lovely mail in my P.O. Box – cards and books, seeds and poems, such as this one by Danusha Laméris.

Insha’Allah

I don’t know when it slipped into my speech

that soft word meaning, “if God wills it.”

… How lightly we learn to hold hope,

as if it were an animal that could turn around

and bite your hand. And still we carry it

the way a mother would, carefully,

from one day to the next.

Refusal that the World is Random.

Cancer or not, the everyday world proceeds. I renegotiate the dullard car insurance (why would I pay to insure myself when I’m not driving?). This morning, the cat, seeking the milk jug on the counter, leaps on the kibble container I didn’t properly close. Kibble mounds over the kitchen floor. For the briefest moment, both cats stare, unable to process their astounding luck: a landslide of food.

Among minor domestic changes which involved a ridiculous amount of discussion: we swapped one washing machine for another. I posted the old one (a workhorse from the previous century) for free on the local digital bulletin board. While I was heating up the pot roast my friend dropped off, a young man I’ve known since he before he lost his milk teeth asked if the washing machine was available.

He arrived not long afterwards. We stood in the kitchen, talking about infected wisdom teeth (his, removed) and cancer (mine, in process of removal) and the medical system and capitalism. He asked if I knew what gave me the cancer, what empowered one gene to divide and divide again and again.

I have my theories, my guesses about this answer, nothing hard and set chiseled into stone. But isn’t it often the way that a sudden shift in events is triggered by multiple strands of actions, working seen or unseen? Leaning against the door, rose-cheeked with cold, he posits that nothing happens without a reason, that the universe is never capricious. I set my wooden spoon on the counter.

Here’s a thing: two months — 60 days — into the cancer world, with two rushed ER visits and two dodges of the grave, two chemo sessions, a complete upheaval of my life, my family’s, my colleagues’ — I woke early one recent morning and realized cancer will be with me until I cross into the next realm. But likewise, what I’ve labored hardest and most tenaciously and (often) most joyously will be with me, too. Raising babies into women, writing books, sobriety, cutting off a troubled marriage and recreating my life. But aren’t we all that way? Shouldering along with us the stones of our lives we’ve chosen, and the rain that’s fallen from the heavens and soaked us, too?

Here’s a Vermont Public Radio interview with Vermont Almanac editors Dave Mance and Patrick White, about this unique books and the non-cliché Vermont world.

A few lines from Dave Mance’s preamble to a book packed with plenty more….

…. seek out things that are real and hard…. Gravitate towards things that are beautiful. Lean in to things you cannot understand…. Tell stories where trees are protagonists. Look at the lines on your palm and see that, like wood, your skin has grain.

In the cracks around kindness.

Thaw, on this New Year’s Day, hovering near freezing, my neighbor’s yard under her great pines exposed to soggy grass, the fields on the hillside across the village bare as late April.

I pull on my coat and boots and stand on my porch. The tree branches are festooned with droplets. Cold will press in again this week.

Wednesday morning, holiday, my scrawled list penciled on a post-it on my kitchen table, waiting. I perch on the covered sand bucket and sip the coffee, my hands wrapped around the mug. My memory wanders back to the Maine coast where we spread my mother’s ashes last June. My mother loved domestic spaces. She would have been enchanted by the colored lights my kids strung over my barn, along the porch roof over my head. Likewise, in my house, she would have admired our tree with the red star topper, the room illuminated with tiny lights. Nearly housebound with cancer recovery, my household has been blessed with gifts of candles, savory meals, foil-wrapped chocolates, fragrant rose oil from Bulgaria. All this, too, would have intrigued my mother.

My mother loved the wild, too, for much of her life quick to pack up the car and head for the open road.

In Maine, we parked near the shore. The sweetness of rugosa roses buoyed along the breeze’s brine. In the curving, layered landscape of rock and the rhythmic crashing pound of the ocean like the planet’s beating heat, we returned her remains to the immense wild, the mysterious territory where she had, after all, emerged from.

A crossing over.

This second memory, too. Later that summer, visiting my old father in New Mexico, my young woman daughter and her friend fried eggs and buttered toast for breakfast. In their strappy sundresses, they sat at the round oak table, sipping coffee. The friend had never visited New Mexico; her eyes gleamed. My father gave them his credit card and told them to eat lunch in downtown Santa Fe, in the courtyard which had been a family compound, 200 years and more ago. Later, the girls returned with leftover enchiladas and stories of flowering trumpet vines and singing birds. We must go into the beautiful mountains.

Yesterday, this daughter walked me around the high school, the beginnings of my strength returning. In the hidden back, a path leads into the woods. She held my hand, admonished, “Not yet.”

On this misty, rainy New Year’s morning, a prayer to cultivate patience and mercy for these interwoven journeys…

Before you know what kindness really is
you must lose things,
feel the future dissolve in a moment
like salt in a weakened broth.
What you held in your hand,
what you counted and carefully saved,
all this must go…

Naomi Shihab Nye

In-Between Season.

My daughter drives me to the high school where a few cars are parked, likely basketball players getting in a few extra workouts. We walk for a slow bit on the sidewalk and then drive north, up along the Black River towards Eligo Lake. At the boat launch, she turns off. We sit. Someone’s been out on the ice.

We are in the in-between season, neither Christmas nor New Year’s, 2024 finally spun down to nearly nothing, a whole new year, beginning with that wintry January looming large.

I am in the in-between season, too. Were it not for antibiotics and chemo, I would have passed from this world, or surely be heading that way. I am in the holding season, enduring, enduring, the chemo (and I’ll admit how terrifying chemo is, crimson red, fluorescent orange) destroying the lymphoma, draining my strength — and yet I’m still me, mellowed in many ways, stripped of patience with foolishness in other ways.

The December this daughter was two, snow fell every day. In January, the snow kept falling. The garden fence, the sugarhouse, the driveway and road, vanished in windswept white. This was before the age of internet. I stirred batch after batch of homemade play-doh. She had a doll stroller with a striped seat and pushed her babies around the house. Outside, I pulled her on a sled though the woods We looked for tracks, caught perfect snowflakes on our mittens. That winter seemed eternal, too, but it was not.

In the cancer world, or not, we’re always in the in-between season, life ebbing and rising, children growing, the snow pillowy but for a moment before settling to ice, washing away in rain.

Everything Is Made Of Labor
Farnaz Fatemi

The inchworm’s trajectory:
pulse of impulse. The worm
is tender. It won’t live
long. Its green glows.
It found a place to go.
Arrange us with meaning,
the words plead. Find the thread
through the dark.

❤️

In the night, snow. My youngest ventures downstairs from her second-floor lair and feeds the wood stove, asks if I’m still reading, and don’t I think I should be getting some sleep… Around my knees, the cats yawn at her, nestling into their cat-dreams for a winter’s sleep. Outside, the town plow rumbles up our road, backs around, beeping, and disappears into the falling snow.

2024, a year that’s meant so much to so many. In our house, the year my mother died, the year I almost died, too. The inside-out year of reversal. In these quiet December days, getting better, getting stronger, getting weaker, moving along that jagged zigzag towards health, I’ve been lucky to read and think, to be warm and tended, to savor small sweets. Games of gin rummy. Poems Jo reads in her clear strong voice and sends every day. Brad’s photos of wintry Lake Champlain, luminescent portals of ice and drooping snow and runny sunsets. For so many of you, some whom I know well and have gone in and out of the depths of friendship and family, and some whom I hardly know, the circle around me has made all the difference.

When I first knew I had cancer, an acquaintance who had survived breast cancer told me it was the loneliest experience of her life. Like anyone, I’m well-acquainted with loneliness, have battled this shackled companion through divorce and betrayal. Where now has fate sent me? Illness was a forbidding shore where I never wanted to land my kayak, bend down in the cold murky waters and hoist my flimsy craft to safety. But illness is our common terrain, and those who dwell here – through happenstance or vocation – welcomed me in with compassion. As The Good Doctor told me, We are all patients. More plainly, perhaps, we are all mortal, conjoined.

Wishing you all some radiance from Vermont, prettied up this early morning beneath a downy snowfall….

“The Verge”

Reason is a fine thing, but remember there are other ways
to live: by instinct or passion, or even,
maybe, by revelation. Try it. Come around again to the verge –
that place of about-to-open, near where we comprehend
and laugh and see. Why shouldn’t something marvelous
happen to you? Take even an occasion like this:
A man reading at night looked up at the window to find
a moose looking in, interested and unafraid
with quiet dark eyes. He reports he has never been the same;
he finds the ungainly and miraculous everywhere.
He said it started the next night in the empty window
as he watched his reflection looking right back through.
He said he saw his own beauty, how even in his same old face
the quiet eyes were curious and ready to be true.

– Annie Lighthart