Backaches and all.

Snow returns to Vermont; I remember an April 1st years ago when the snow fell so mightily our sugarhouse was hidden. I worried our toddler might get lost in the drifts.

These (early spring) afternoons, I walk around my garden where last autumn’s sunflower stalks still stand. The robins, those cheery birds, cluster. Redwing blackbirds sing joyously.

I’m nearly at my last chemo session – yes, counting down day by day, my simple math calculations and not-so-simple life. Mornings, I pull myself together to work; afternoons, I lie on the couch with my cat and read. The town library orders me interlibrary books. Recently, Blue, an illustrated memoir of St. Bart’s that I read in a few hours, a sojourn into a Caribbean vacation with a sweet family. I will be traveling nowhere outside the country, anytime soon, although I dream…

Where I am now is different terrain. My house has sheltered me (and my family) so warmly and kindly during this winter of disease. Now, I see where our house needs tending – paint on the barn, boards hammered back on the porch where the ice crashed. Every spring and summer, too, I plant more in the gardens, cultivating good living for birds and pollinators, not necessarily the woodchucks who come, unbidden. There will be no wars on my patch of hillside.

The bigger work for me now is healing; how happily I’ll shed medical appointments, the world of sickness, and savor my long walks again. My oncologist told me last fall that someday I’d forget I ever had lymphoma, and I’d forget him, too. Maybe someday if dementia drills into me (many many years from now). I would need to live a long long life if I were to forget this year.

In these winter months of cancer suffering, I’ve longed for many things, but prominent among these desires is to imbue this cancer with meaning. So now, as I’m beginning to contemplate my next steps, the spring and recovery phase, I’m determined to not slip into old habits or careless living. I mean nothing sentimental about this, as if plastering a gratitude sticker on my life will fix up my world.

Which way this will go is yet to be determined. Certainly, planting more perennials.

Stacking wood today

I thought how much I loved this life,

Backaches and all.

~ John Straley

“When the electricity shuts off, you boil water, you crack ice.”

In addition to showing up at Dartmouth-Hitchcock for chemo and consults to save my life, which thankfully appears to be going nicely, I also joined a writing group the hospital offers. Because writing saves lives, too.

Here’s a poem I read in this class, too good not to pass along.

“Chickens” by Kate Gale

I come from hay and barns, raising  
chickens. In spring, lambs come.  

You got to get up, fly early, do the orphan run  
sleep till dawn, start the feeding.  

When the electricity shuts off, you boil water, you crack ice.  
You keep the animals watered.  

You walk through the barn, through the hay smell, 
your hair brittle where you chopped it with scissors  

same ones you use for everything. Your sweater has holes.  
When you feed the ram lambs, you say goodbye.  

Summer, choke cherries; your mouth’s dry. Apples, cider.  
Corn picking. Canning for weeks that feel like years.  

Chopping heads off quail, rabbits, chickens.  
You can pluck a chicken, gut it fast.  

You find unformed eggs, unformed chicks.  
They start chirping day nineteen.  

You make biscuits and gravy for hundred kids  
serve them up good. You’re the chick  

who never got past day nineteen, never found your chick voice.  
You make iced tea. They say, you’re a soldier in the king’s army.  

At night, you say to yourself, Kathy, someday.  
We go walking. We go talking. We find a big story.  

A cracking egg story. A walking girl story.  
A walking out of the woods story. A not slapped silly story.  

A not Jesus story. Hush, Kathy you say, we get out of here.  
We find out where chicks go when they learn to fly.

Beyond words.

A few days of streaming sunlight. I wander around outside, over the crusty remains of snow, the thawing grass. The garden yet lies covered. A junco picks at seed scattered beneath the feeder. This far along in the chemo, staring at the end, I’m hard used up, muscles withered, fat trimmed near to my bones. But here, here, alive.

My life – physically, mentally, economically, spiritually – has been crumpled up by disease. Now, ahead, lies the unfolding, the remapping. A friend visiting with her three-year-old, with daffodils and chocolate, points out what I’ve recently reckoned with: that my fierce independence, my raving insistence to live my life, on my own terms and never shaped to the pattern of any man (as Tillie Olsen wrote), has long been my lifeline, the way through lean times, betrayal, uncertainty. But cancer, that mighty devil, flipped that in my face and revealed it as my hollow weakness, too.

Day by day here, determined to remain free from the hospital, to finish to the final drop this course of so-called treatment, glean back what I can salvage. Four months ago, I didn’t think I would live to see this season’s Chionodoxa blue flowers. This afternoon, my daughter and I remarked that the walnut tree I planted seven years ago as a mere twig has plump buds on its lengthy branches. Buds, blossoms, leaves. Beyond words.

“Why do you want to shut out of your life any uneasiness, any misery, any depression, since after all you don’t know what work these conditions are doing inside you? Why do you want to persecute yourself with the question of where all this is coming from and where it is going? Since you know, after all, that you are in the midst of transitions and you wished for nothing so much as to change. If there is anything unhealthy in your reactions, just bear in mind that sickness is the means by which an organism frees itself from what is alien; so one must simply help it to be sick, to have its whole sickness and to break out with it, since that is the way it gets better.” ~ Rilke

Calendar (and actual) spring…

In my rinse-and-repeat pattern of this long winter, driving back from Dartmouth in the late morning, sunlight sprawling over the brown fields, the tree limbers along the interstate beginning the season’s cutting, I notice the Connecticut River has thawed. Unmutable sign the back of this mighty winter has cracked.

Home, my yard half-buried yet in twig-strewn snow, the ash buckets mark their winter resting place, a chaos of cinders that touch the edge of the quartz-pebbled rose garden my youngest and I made, years ago.

Later, a friend stops by with good cheer and belated and welcome Christmas presents. The sun is yet bright. We walk, slowly, slowly, on the short stretch of dead-end road before my house. I point to a robin perched in a pin cherry. She spies last summer’s hornet nest spun into the lilacs, a nest on the neighbor’s windowsill.

We were once neighbors ourselves. In mud season, we walked with our little kids up and down our back road, taking our time as the kids searched for frog eggs in the roadside ditches and tender green folds pushing up through matted brown leaves in the forest: the first spring beauties and trout lilies, bloodroot. Now, during my last hospitalization, her son repaired my daughter’s car, stayed for dinner and conversation.

Too snowy and wet to sit down, I lean against my car’s bumper. A robin chirps in the neighbors’ sugar maple, an expanse of curved trunk and branch and twig. Such a meager peep peep this rust-bellied hand-sized creature makes, prying winter away, thrusting our world towards nest building, egg laying, song.

“Against Panic” by Molly Fisk

You recall those times, I know you do, when the sun  

lifted its weight over a small rise to warm your face,   

when a parched day finally broke open, real rain   

sluicing down the sidewalk, rattling city maples   

and you so sure the end was here, life a house of cards   

tipped over, falling, hope’s last breath extinguished   

in a bitter wind. Oh, friend, search your memory again —   

beauty and relief are still there, only sleeping. 

A cup of tea, surrounded by ice, broken boards.

In the pale blue dawn, I wake with the taste of wild mushrooms in my mouth. In my dream, I’m eating tender stems from a soft paper bag. In the non-dreaming chemo world, I’m temporarily forbidden from dining on fresh anything from the produce world, but in this nubbly dream I munch on, relishing the residual taste of dirt, the forest itself.

I open my eyes. Day 4 – oh, I am counting these 21 days until the sixth of these six chemo sessions – Day 4, and through my window, geese wing across the sky. These past few days, spring blew in, fierce sun. On my back deck, broken by ice, a friend stopped by yesterday. I made tea, and we talked about this and that, kids and disease and politics, when we might plant spring peas. On my desk waits a cardboard box of wildflower seeds, a gift for this summer.

Spring is radiant light and also brokenness. The ash buckets trailing coals, the deck joists smashed by the roof’s ice, the barn still desperately in need of paint. Me, too, broken, with my few hours of clarity in the mornings, the stumbling way I’m heading towards this final treatment. Around me, too, the remains of this winter: people who have helped me more than I could have imagined, others who have distanced themselves, the disease itself, perhaps, too much, the leer of mortality a shivering thing. All that is neither here nor there. The cancer has stolen a share of my vitality, my economic steadiness, a winter of my life. And yet, all these pinwheeling days and nights as I’ve traversed this tunnel – what an infinitely rich journey, one I never would have booked a ticket to join.

My daughter sends word of singing redwing blackbirds. Spring, mightier than winter’s brawn. The season of planning, putting things back together, rearranging and cleaning, of tipping our eyes up to the sun, relishing the light.

…. Ariel Gore repeatedly quotes Audre Lorde’s The Cancer Journals in her Rehearsals for Dying. In these lines, I was reminded how we each respond to crisis in others’ lives, too, from the soil of our lives.

Each woman responds to the crisis that breast cancer brings to her life out of a whole pattern, which is the design of who she is and how her life has been lived.

After an absence, return.

Photo by Molly S.

A long while away from this space after a day last week that began easily enough in our kitchen with my daughter and transpired into another Dartmouth ER visit and a prolonged stay. Days and nights chopped into mosaic pieces. MDs and RNs, the revolving cast of the Dartmouth surgical team, my daughters, pain meds, ice chips, me sitting up and begging for a patch-up to get me to my next chemo appointment… Get me out of this chronic patient repeat.

Now, five of the six chemo treatments completed, I am in the final haul. While my in-box filled up (thank you for your patience), and I was moved from room to room by kind people, I kept thinking of this cancer in a narrative arc. I had hit the section of story where the impossible commences. Before, things looked grim. But now, as protagonist in my own story, the arc swerves sharply, the longed-for light-at-the-end of the tunnel snuffs out, the path is hidden.

I’m not a writer for naught, for make-believe or play. I’m a writer because I know our lives tread meaningful albeit sometimes horribly hard paths. Lean in, I counseled myself, my shoulders far skinnier now but just as fierce. Use math. Get to the fifth infusion. Get to the sixth. Count down the finite days to the end of this treatment, which is, thankfully, eradicating the cancer. In the mosaic: my two daughters, the plastic IV tubing, the doctors in their masks, the ER nurse who stayed long past his shift in the middle of the night, holding my hand and assuring me that, yes, indeed, I would endure.

This is my story, but also the human story, in all our infinite variations of human desire, choice, the immutability of fate.

Sunny morning in our kitchen, birdsong, the fierce thrust towards spring.