remission

This Glorious Autumn Light.

/ Brett Ann Stanciu / 4 Comments

My sister, a caner survivor, once told me that a cancer diagnosis was a great leveler. This was years before my own cancer experience, and, sure, I had an intellectual understanding of this. Lymphoma schooled me in many ways, among these that I live in my body. Such a simple, profound thing. I had never lived in a body that couldn’t walk up the stairs in my own house, not just because of a sprained ankle or a new baby in arms, but because of weakness in my bones and flesh. I had never considered that I might never be able to enter the bedroom whose walls I painted, where I have slept for so many years.

These days, after a summer devoted to learning how to eat and sleep again and to walk those stairs, outside as much as possible in this gloriously sunny, perishingly dry Vermont summer, I no longer embody the near-translucence of cancer-and-chemo patient. Such pleasure I have when people ask why I’ve cut my hair, and I can reply that I didn’t snip, I lost. The hair I’ve lost is now returning in a metaphor that I can’t ignore: softer but with my childhood cowlick.

Disease hasn’t magically transformed me; if anything, my thorns have proliferated. But here’s a thing: the world where I live is descending into spectacular autumn. Sure, some years the fall foliage bursts brighter than other years, but always, always, heartstopping in beauty. Autumn’s a reminder of my mortality, your mortality, the dearness of this fleeting world. A reminder to pause in our gardens, on our house steps, the sidewalk, whatever trail we may be following. Take a moment. Breathe in, out, in….

From Stephen Jay Gould’s essay “The Median Isn’t the Message”:

Of course I agree with the preacher of Ecclesiastes that there is a time to love and a time to die—and when my skein runs out I hope to face the end calmly and in my own way. For most situations, however, I prefer the more martial view that death is the ultimate enemy—and I find nothing reproachable in those who rage mightily against the dying of the light.

… send what you will, I will listen.

/ Brett Ann Stanciu / 9 Comments

This winter, I joined a Dartmouth Writing Circle for cancer patients. At that time, my waking hours were pretty much confined to the couch, endeavoring to stay alive, and I thought why not? I’ve kept on with this Circle. Compulsively, I keep writing about disease, but others write about aging parents, children and memories, picking strawberries — the necessary pieces of our everyday lives. Their poems and short essays amaze me. Maybe the lesson is this: suffer from a disease, pay attention, unfold your heart.

So yesterday, another trip to Dartmouth, but this time not to the door of the ER or 3K — the cancer center. My youngest daughter had signed up to walk in The Prouty, a weekend of fundraising. The four of us drove together, my daughters drinking coffee and laughing in the front seat, the boyfriend and I in the back. In the thousands of participants and volunteers, I met a few of my Writing friends as if kismet.

My family ate doughnuts and drank chocolate milk. We walked and ate watermelon and the sandwiches that appeared on tables as if by magic. At a long table, we lingered beneath a white tent, admiring babies and small dogs. It was at once a family event (my family, who pulled me through this winter) and a community embrace. When my daughter signed up (and a HUGE thanks to those who donated to her team), I didn’t, as I could hardly stand two months ago. Walk a few miles? Forget that. Now, my legs gaining muscle, my body healing, I walked between my daughters, so full of youth and quickness, of wit and curiosity. So profoundly of this world.

We live lives of forgetting, but I have not forgotten those long days in 3K’s infusion center, the chemo drugs dripping into my veins while I stared through the window at cardinals in the snow, or that night in the ER when the MDs in scrubs posed the possibility that I couldn’t finish the chemo treatment, that enough was enough for my body which was now, I noticed, described in my chart as frail. An adjective I immediately hated. Fuck frail. By that time, my flesh and my blood was suffused with zofran and dilaudid, lactated ringer’s, with the mighty rituximab…. But even though my bones and my flesh are my domain, my life is not. There’s a tendency in my circle of leftish rural Vermont to look at the medical world askance — an indulgence that immediately dried up for me when I first arrived in the ER. All along, I’ve asked for the data and facts; what am living through now and what might this mean? Beyond this, I was encouraged to embrace the mysterious complexity of disease, data, determination, the universe’s toss of the dice. When I said, go ahead, make me more frail, I’ll endure, the Good Doctor made that possible.

I have not forgotten that I am alive by the grace of medicine and strangers, by my family, by illusive fate itself. I carry this knowledge as all day long I go about my life of writing and working, of watering the flowering nasturtiums, eating peaches, reading novels and poetry and cancer research beneath the apple tree, as I walk through the sultry July twilights, that this will someday — this year, or 30 years from now — change for me, too, as it changes for everyone.

But for now, luscious watermelon. Later, a family dinner on the back porch, summer sweet.

From Ruth Stone:

… send what you will, I will listen.
All things come to an end.
No, they go on forever.

“Where are you going?”

/ Brett Ann Stanciu / 19 Comments

Photo above taken in a courtyard garden at Dartmouth-Hitchcock. Inside the building, there’s a short flight of stairs to a sunroom. Glass doors lead to the garden. Much of this winter, I couldn’t walk those half-dozen steps. When I finally could, I proofread my daughter’s college essays in the sunroom. We stared out at the blowing snow and wondered what grew in the spring garden.

Today, mid-June, an appointment of good news. The Good Doctor reminds me that I’ve finished treatments, that I’m in remission. Go on and live your life. Gain weight and muscle.

I’ve been so far out of the everyday world that, after this appointment, waiting in a gas line, seems like a small event. For some reason, I remembered the gas station a few miles from my father’s house in Santa Fe, New Mexico. On a random summer morning, I pumped gas and then stood for a moment, breathing in the spiciness from the station’s kitchen vent and staring up at the flawlessly blue sky. The desert’s hot breath touched my cheeks, my hands, my bare knees – at once so familiar to me (my birthplace the New Mexican desert) and enchantingly unknown. The day lay before us like a pie that could be cut any which way, and the result would be enjoyable.

That’s how I felt, leaving the cancer center, walking up the stairs in the parking garage – light – as if I had shed that caul of cancer and pain. I mean nothing easy or innocent about this lightness. One afternoon when I could barely walk around the high school, I sat in a friend’s car and imagined myself as gray – my face ashen, my bones crumpling to cinders. I wondered how I would survive. In December, wandering the halls of yet another hospital, I turned around and couldn’t recognize the only other person in the hallway, my friend Jo who was even calling my name. “Brett, where are you going?”

Living with cancer taught me that we are not creatures of the mind; we live in our bodies. Cancer may return in my flesh this summer, two years from now, or never. I may perish falling down stairs, or expire as an old woman in my bed beneath a quilt my mother sewed. Any hubris I once had about eating organic brown rice and my garden’s bounty vanished this winter; mortality’s blade is ubiquitous, final.

Nonetheless, this day…

Driving home on the interstate, my daughter and I mused about hurried drives through snow to the ER, the repeated treks, northward, home, where we scrutinized roadside trees for the faintest blush of spring green. This time, my daughter pointed out patches of lupines, purple and pink and white, sure sign of summer.

You must do something to make the world more beautiful.

~ Barbara Cooney, Miss Rumphius

Under a Thousand Stars.

/ Brett Ann Stanciu / 13 Comments

Walking home, I spy a smattering of white blossoms among a stand of pines, off the path. That short stretch is a strange area, more sand than soil, unusual on my Vermont hillside. Running theory is that someone stripped the top soil, years ago. Although I haven’t energy in excess, I’ve enough that I wander from the path. The blossoms are wild strawberries. Sweet mark of June.

For those not in New England, the common gripe is the weather. Every weekend, rain. Figures are tossed that there’s not been a fully sunny weekend since December; then I hear November. As for me, recovering, the days and weeks merge. Now, three weeks out from surgery, I’m easing back into work. The cats wake me at early light. In recovery, my old worries rekindle, but so does my drive and curiosity. I get up, eat cereal and maple syrup, brew coffee. I spread the manuscript of my fourth book over the kitchen table, cut, rearrange, stitch.

What’s changed, though, is a new slowness, a willingness to let the course of things unfold, to crouch beside those strawberry blossoms, wondering which birds will snag the tiny crimson berries. In a few weeks, I may wander here and sample this sweet delicacy. Half of this May, I lived in a hospital. Finally, I limped out the door with my brother. While he drove me home, I kept saying, “I’m out, I’m out,” and “The trees are leafing, the forsythia is blooming, the lilacs are opening.”

That surgery and that stay might likely have saved my life, again; and again, how immeasurably capable and kind was the hospital staff. Nonetheless, it’s June. The sky this morning is scrimmed over with smoke from wildfires. Under that dome, I have work to do. A friend will visit. I’ll move through this day, this Wednesday, happy.

I want to lie out

on my back under the thousand stars and think   

my way up among them, through them,   

and a little distance past them, and attain   

a moment of absolute ignorance,

if I can, if human mentality lets us.

I have always intended to live forever;

but not until now, to live now.

~ Galway Kinnell, “The Sekonk Woods”

Start again…

/ Brett Ann Stanciu / 11 Comments

Twenty years ago, I wandered on an early morning walk. Mightily pregnant, I didn’t go far, merely down to our sugarhouse and through the white pines. I looped back through the garden. I was about to have a second baby — that very day — and, second time around, I knew those solitary walks would — for an undetermined time — be a distant memory.

In a break in the rainy weather, a friend walks me through the cemetery, past the little league field, and down the hill into town. At Front Seat Coffee, she buys cookies, and we sit in the courtyard, eating and talking, the courtyard where I’ve passed so many hours with my laptop. Slowly, we walk back up the hill. Three robins perch on the elementary school’s fence.

Six weeks ago, another friend walked me to the Galaxy Bookshop, the first walk I’d taken to town since last November. I picked up a copy of Dostoyevsky at the Galaxy, and finished the novel in Dartmouth, waiting for surgery. The surgeons teased me, Why such light reading?

One more lesson from cancer: how intensified the world becomes. Slip back, start again. Repeat, repeat. But isn’t that one way of the world? There’s plenty more ways — a crash, a sudden halt, a perilous nonstop descent — but often our lives are fits and starts.

I remind myself, Try to learn something.

This day dawns overcast, broody with the promise of rain, the world lush with spring green and birdsong. To keep myself and my cats happy, I light a fire in my stove, brew coffee, consider the day. As I recover, my old demons of uncertainty have woken, too. My walking companion counseled me to narrow my energy to the actual day. Help was recently sent fortuitously to me; this morning, as I mixed powdered sugar and butter for cake frosting, I reminded myself, Be grateful; use your luck wisely. Savor this day.

At Twenty-Eight

By Amy Fleury

It seems I get by on more luck than sense,

not the kind brought on by knuckle to wood,

breath on dice, or pennies found in the mud.

I shimmy and slip by on pure fool chance.

At turns charmed and cursed, a girl knows romance

as coffee, red wine, and books; solitude

she counts as daylight virtue and muted

evenings, the inventory of absence.

But this is no sorry spinster story,

just the way days string together a life.

Sometimes I eat soup right out of the pan.

Sometimes I don’t care if I will marry.

I dance in my kitchen on Friday nights,

singing like only a lucky girl can.

Determined to do/the only thing you could do…

/ Brett Ann Stanciu / 24 Comments

When I was six, I dropped a large wooden board on my toe, right where the nail emerges. My mother lifted me up and soaked my foot in the bathroom sink in Epsom salts. I cried fiercely, and my mother said she wished she could take the pain from me. Impossible, of course. Later, I lost the toenail.

The night before my last chemo infusion, I woke thinking of my mother who died nearly a year ago. She never knew I had cancer. Of all my family, only my mother endured chemotherapy, at age 80. Like so many mothers and daughters, we had a tangled and complicated relationship, sometimes fierce, sometimes outright silly and joyous. Not knowing about my cancer was one thing she was spared in her life, at least. No one seeks cancer, but in this long and snowy winter, I was spared the misfortune of being a parent of a sick child. Anything can change in this world, at any moment, but for now….

Recently finished with chemo treatments, how grateful I am to Dartmouth and its staff for their exquisite care. How humbled and thankful I am for the people who wrapped around me – some of whom I’d never met before. To write that cancer changed my life would sound trite. The deeper truth is that this disease will be with me for the remaining days of my life. But my life is in the present tense. I have not changed. I am changing. How blessed I am to be here.

… little by little…
the stars began to burn
through the sheets of clouds,
and there was a new voice
which you slowly
recognized as your own,
that kept you company
as you strode deeper and deeper
into the world,
determined to do
the only thing you could do —
determined to save
the only life you could save.

~ Mary Oliver