The crying moments…

I’ve written frequently in this space about living with cancer and cancer treatment since I was diagnosed with lymphoma last November. From the beginning, I was determined to hold myself together. Some of this was simply shock; I could not believe I had been walking around, working, going to birthday parties, hanging with family and my friends while cancer was devouring my body. By the time I ended up in the ER, telling the triage nurse I was circling the drain, the cancer had metastasized to stage four. I needed a moment. I was not about to get a moment.

In the long hours of yet another ER visit, my daughter told me that a longtime friend had asked her last November if I actually intended to undergo chemotherapy. I hadn’t heard about this inquiry, and the question stunned me. I’ve been my daughters’ sole parent for a decade now; even in the worst of these cancer nights and days, I remain foremost a mother, unable to relinquish my watchful eye. After diagnosis, it was immediately clear that the cancer was rapidly growing; without some kind of treatment I would die that winter. The lymphoma I have responds well to chemo. My other option, perhaps, was to seek an alternative treatment — where, for how much, and with what likelihood of success — was dubious at best. In my fifties, I was determined to live. My oncologist was clear that the chemo would shove me to the edge of demise. He told me, You are curable. So, in a rare action of trust, I stretched out my arms and said, Infuse me.

As the cancer was so advanced, I suffered numerous complications from the chemo, which resulted in all the hospital stays I’ve referred to in this blog — nearly a dozen — weeks and and weeks and weeks this winter.

Now, April, Easter rising tomorrow, I’m drinking a friend’s homegrown chamomile tea this morning at my kitchen table, watching the small rain feed spring’s green, alive, in remission.

From the get-go, too, I determined not to burrow into the rathole of despair that I’ve seen disease wreck upon individuals and spread to families. This recent ER visit, however, forced me to the crying day. I wept before the kind nurses, the warm hematologist with her sparkly hair, the PA who insisted I not leave even as I connived deals and plans for discharge. I did not cry before the elder hematologist, who had certainly been practicing medicine for most of my life. I said, yes, yes, I understand. And then I wiped my tears with my thumb when he left.

By the late hour when my daughter had left, and I was alone again in the darkened ER room, I’d taken stock of what I’d crammed in my backpack: two books, my laptop and charger, a handful of underwear, my notebook. I’d forgotten my knitting, which was unfortunate. The nightshift nurse brought me water and those eternal saltines. She was a traveler and had last worked in Iowa.

Much later the next night, two nurses wheeled me through the dim and empty hospital halls to another room. Of all the experiences I’ve had at Dartmouth-Hitchcock, I’ve oddly enjoyed these late night journeys through this huge building. So many stories here, so much living and dying, so much richness. By then, I’d finished with my weeping, joined the world again, all of us, doing what we’re doing.

A driving spring rain
gliding, wending through the trees
speaks in little drops

~ Bashō

An umbrella walks past…

File this week under “the best-laid plans of mice and men go oft astray,” or, just because I desire something has no factual bearing on reality. (Is there a message for national politics here?)

My sixth and infusion has been delayed, as I’m admitted, again, at Dartmouth-Hitchcock. Two days before that scheduled infusion, I woke around 11 at night and phoned my older daughter who was just getting into bed. I said, “You’ll have to take me back to Dartmouth again.”

In a thick fog, she drove my mother’s blue Subaru down the interstate along the wide river, with sparse traffic and scant words from me. In the ER, late, late, we’re taken into a room, and the usual questions and IV and meds began. The nurse remembered me from my previous visits. In a rocking glider, my daughter slept a bit while I wondered at the light’s hue: amber, or tinged with orange, like heating lamp mixed with a gentle reading light.

Eventually, awake for over 24 hours, my daughter heads home to sleep. My oncologist appears and reassures me. “You’re getting there. A few days later, but getting there.” Our conversation drifts into where I’m heading in this new phase of disease – recovery, oh say that word again, recovery. What will this mean for me, and how will my life change? We talk a little about trust, and he mentions that, once trust is broken, it’s nearly impossible to mend that damage, a fine thing ruined.

So here I am, in yet another bend of this journey, learning patience, learning something more along the tenor of faith, that whatever is not within my sphere of influence is not mine to alter, such as these days here.

April. My younger daughter brings me blooming hyacinths and bulbs in a glass vase. The doctors talk with me about Donna Tartt’s The Goldfinch, and if the federal funding for Vermont’s interlibrary loan system is jeopardized. I tug at the strings of normalcy coming my way: a nurse’s trip to Des Moines a few springs ago and the city’s tulip beds; a friend’s email about dropping a car at airport for her husband; another friend reads Mary Oliver and sends me recordings; will my cat sitter eat whatever I’ve left in the fridge? Small things that stitch our lives together.

Spring rain:

telling stories,

a straw coat and umbrella walk past

~ Yosa Buson

Backaches and all.

Snow returns to Vermont; I remember an April 1st years ago when the snow fell so mightily our sugarhouse was hidden. I worried our toddler might get lost in the drifts.

These (early spring) afternoons, I walk around my garden where last autumn’s sunflower stalks still stand. The robins, those cheery birds, cluster. Redwing blackbirds sing joyously.

I’m nearly at my last chemo session – yes, counting down day by day, my simple math calculations and not-so-simple life. Mornings, I pull myself together to work; afternoons, I lie on the couch with my cat and read. The town library orders me interlibrary books. Recently, Blue, an illustrated memoir of St. Bart’s that I read in a few hours, a sojourn into a Caribbean vacation with a sweet family. I will be traveling nowhere outside the country, anytime soon, although I dream…

Where I am now is different terrain. My house has sheltered me (and my family) so warmly and kindly during this winter of disease. Now, I see where our house needs tending – paint on the barn, boards hammered back on the porch where the ice crashed. Every spring and summer, too, I plant more in the gardens, cultivating good living for birds and pollinators, not necessarily the woodchucks who come, unbidden. There will be no wars on my patch of hillside.

The bigger work for me now is healing; how happily I’ll shed medical appointments, the world of sickness, and savor my long walks again. My oncologist told me last fall that someday I’d forget I ever had lymphoma, and I’d forget him, too. Maybe someday if dementia drills into me (many many years from now). I would need to live a long long life if I were to forget this year.

In these winter months of cancer suffering, I’ve longed for many things, but prominent among these desires is to imbue this cancer with meaning. So now, as I’m beginning to contemplate my next steps, the spring and recovery phase, I’m determined to not slip into old habits or careless living. I mean nothing sentimental about this, as if plastering a gratitude sticker on my life will fix up my world.

Which way this will go is yet to be determined. Certainly, planting more perennials.

Stacking wood today

I thought how much I loved this life,

Backaches and all.

~ John Straley

“When the electricity shuts off, you boil water, you crack ice.”

In addition to showing up at Dartmouth-Hitchcock for chemo and consults to save my life, which thankfully appears to be going nicely, I also joined a writing group the hospital offers. Because writing saves lives, too.

Here’s a poem I read in this class, too good not to pass along.

“Chickens” by Kate Gale

I come from hay and barns, raising  
chickens. In spring, lambs come.  

You got to get up, fly early, do the orphan run  
sleep till dawn, start the feeding.  

When the electricity shuts off, you boil water, you crack ice.  
You keep the animals watered.  

You walk through the barn, through the hay smell, 
your hair brittle where you chopped it with scissors  

same ones you use for everything. Your sweater has holes.  
When you feed the ram lambs, you say goodbye.  

Summer, choke cherries; your mouth’s dry. Apples, cider.  
Corn picking. Canning for weeks that feel like years.  

Chopping heads off quail, rabbits, chickens.  
You can pluck a chicken, gut it fast.  

You find unformed eggs, unformed chicks.  
They start chirping day nineteen.  

You make biscuits and gravy for hundred kids  
serve them up good. You’re the chick  

who never got past day nineteen, never found your chick voice.  
You make iced tea. They say, you’re a soldier in the king’s army.  

At night, you say to yourself, Kathy, someday.  
We go walking. We go talking. We find a big story.  

A cracking egg story. A walking girl story.  
A walking out of the woods story. A not slapped silly story.  

A not Jesus story. Hush, Kathy you say, we get out of here.  
We find out where chicks go when they learn to fly.

Calendar (and actual) spring…

In my rinse-and-repeat pattern of this long winter, driving back from Dartmouth in the late morning, sunlight sprawling over the brown fields, the tree limbers along the interstate beginning the season’s cutting, I notice the Connecticut River has thawed. Unmutable sign the back of this mighty winter has cracked.

Home, my yard half-buried yet in twig-strewn snow, the ash buckets mark their winter resting place, a chaos of cinders that touch the edge of the quartz-pebbled rose garden my youngest and I made, years ago.

Later, a friend stops by with good cheer and belated and welcome Christmas presents. The sun is yet bright. We walk, slowly, slowly, on the short stretch of dead-end road before my house. I point to a robin perched in a pin cherry. She spies last summer’s hornet nest spun into the lilacs, a nest on the neighbor’s windowsill.

We were once neighbors ourselves. In mud season, we walked with our little kids up and down our back road, taking our time as the kids searched for frog eggs in the roadside ditches and tender green folds pushing up through matted brown leaves in the forest: the first spring beauties and trout lilies, bloodroot. Now, during my last hospitalization, her son repaired my daughter’s car, stayed for dinner and conversation.

Too snowy and wet to sit down, I lean against my car’s bumper. A robin chirps in the neighbors’ sugar maple, an expanse of curved trunk and branch and twig. Such a meager peep peep this rust-bellied hand-sized creature makes, prying winter away, thrusting our world towards nest building, egg laying, song.

“Against Panic” by Molly Fisk

You recall those times, I know you do, when the sun  

lifted its weight over a small rise to warm your face,   

when a parched day finally broke open, real rain   

sluicing down the sidewalk, rattling city maples   

and you so sure the end was here, life a house of cards   

tipped over, falling, hope’s last breath extinguished   

in a bitter wind. Oh, friend, search your memory again —   

beauty and relief are still there, only sleeping. 

Sips of May.

As the spring dusk settles down, I’m wandering around the edges of my garden. The lilacs have just begun opening, a tiny four-petaled blossom here, another there, the remainder of that lavender flower still knotted, not yet relaxed into the wide open spring season.

I’m in my ragged jeans, dirt under my nails, when my neighbor pulls into her driveway and gets out of her Prius. She’s wearing what she calls her rag-bag dress, and the two of us make a kind of pair. I’ve known her since our oldest kids were babes in arms, not yet eating smashed carrots.

It’s been a year for each of us — and I mean that: a year. We both have college-aged kids in and out of our houses. Under the fragrance of pear blossoms, we immediately head into that long-running conversation we have about her work and my work, about writing and art, about aging parents. The half moon rises over my apple tree.

May, in all her radiant beauty. Here I am, with a hundred chores in one day — a hot water heater repair, more writing, plant arugula and Brussel sprouts, my constant fiddling with the wood pile, the daughter chat. How this Vermont world loves to green. Yes, and again, more, yes, yes.