“You got a God.”

Years ago, I ripped out a photo from the New Yorker of Marina Oswald taken the morning after her husband assassinated President Kennedy. She was hanging diapers on the clothesline, her face scrunched in misery. It was 1963, the realm of cloth diapers, and she had two babies. I tacked the photo on my wall.

No assassins in my household. Yet, as I described to a friend, I’m healing from chemo and surgery while the dailiness of life tugs me onward. In some ways, this is a relief; I’m utterly grateful to be in the world where I hand over my credit card for groceries, rise in the night when my daughter returns from work to ask about her hours. I order firewood, problem-solve our broken car scenarios. It’s triage and logistics, a math problem.

This May, a cold spring, snow yesterday all day in the New Hampshire White Mountains, I read through the mail. Make one phone call. A colleague stops by. My daughter makes grilled cheese, slices avocados, rims the edges of my plate with peanut butter cups. My brother texts, my sister calls, reminding me to eat, eat. In all this, I open the Grapes of Wrath, join hitchhiking Joad, and eventually sleep in the wood stove’s warmth. I dream of our lilacs who hold their buds closed against this cold, the Joad corn in the 1930’s, buried in feet of dust. Through my dream washes the rain against our windows, the purple and white violets studding our overgrown grass. Time and place and season sift like a jumbled dump cake.

When I wake, my cat Acer lies purring against my foot, contentedly grooming a dainty paw, supremely confident of an imminent dinner and another toasty night before the beloved hearth.

Memorial Day weekend, when we always invite friends and neighbors for an outdoor dinner. Not so, this year. The pieces in my life, my family’s lives, shift, rearrange, mend. Slow healing, slow domesticity.

From Steinbeck: “You got a God. Don’t make no difference if you don’ know what he looks like.”

Don’t these greens taste good…

My oldest daughter attended preschool for a year on the second floor of a Unitarian Church in a little village on a pristine glacial lake. The village is heavy on the white clapboard quaintness. To get to the town, we drove through acres of farm fields. In May, the fields gleamed with dandelion gold. The merry month of May: bumblebees and blossoms. Revel on…

My daughters visited me yesterday at Dartmouth, a repeat that’s become bizarrely routine — a repeated I’m determined to break. They came bearing gifts of peonies and good cheer. Sunday, we wandered through the wide and mostly empty halls. The hospital is designed to pour natural light into the building, and the sunny afternoon showed its success. We admired the blooming crabapples and wandered through garden courtyards. I gathered more reading material.

I rarely post photos of myself, but here’s me, in my daughter’s sweatshirt, in a photo snapped in an elevator. Dandelion from the youngest tucked into my zipper.

The First Green of Spring

Out walking in the swamp picking cowslip, marsh marigold,
this sweet first green of spring. Now sautéed in a pan melting
to a deeper green than ever they were alive, this green, this life,

harbinger of things to come. Now we sit at the table munching
on this message from the dawn which says we and the world
are alive again today, and this is the world’s birthday. And

even though we know we are growing old, we are dying, we
will never be young again, we also know we’re still right here
now, today, and, my oh my! don’t these greens taste good.

~ David Budbill

Bare soil.

Midnight, I’m sitting outside the local hospital in the balmy night, a few mosquitoes drifting in the streetlights. There’s no one around, save for the young woman in reception poking her phone, the peepers chattering in the wetland down the road. The night is so warm I’m reminded of summer’s open-ended days and nights, the pleasure I’ve taken these last few years sitting outside in the dark, listening to the nightsounds of rustlings and callings, human and wild.

The person who drew my blood just a few hours ago told my sister and me about the local library in nearby Johnson, Vermont. This evening, the library will be moved from where it was built and recently flooded to safer and higher ground near the elementary school. The town will shut down as the brick building is wheeled down Main Street and over a bridge spanning the Lamoille River. In the velvety darkness, I imagine the scene: the floodlights, the crews, the townspeople who will come out to admire and cheer. A small but certainly mighty miracle.

Around the building, I hear the rattle of my Subaru’s loosening heat shield. Then my sister appears in the driver’s seat. Along empty roads, she drives us home. In Wolcott village, I spy a fox rushing across the road. The animal pauses at the weedy edge, head turned towards us, perhaps wondering what we’re up to, too, this creature, like us, in no rush at all. Home again, the cats press against the kitchen glass doors, as if expecting a reckoning from me, an accounting of my absence.

What can I say to these tabbies? When a nurse apologized for dropping a plastic cap on my shoulder, I mused aloud that it wasn’t heavy — and isn’t that a line from Phish? Things are falling down on me, Heavy things I could not see… The nurse knew these lines, too. The heavy falling things are taking a pause, perhaps, in spring, as the earth reorients herself, through peeper song, unfurling leaf, the heady scent of rain on bare soil.

The crying moments…

I’ve written frequently in this space about living with cancer and cancer treatment since I was diagnosed with lymphoma last November. From the beginning, I was determined to hold myself together. Some of this was simply shock; I could not believe I had been walking around, working, going to birthday parties, hanging with family and my friends while cancer was devouring my body. By the time I ended up in the ER, telling the triage nurse I was circling the drain, the cancer had metastasized to stage four. I needed a moment. I was not about to get a moment.

In the long hours of yet another ER visit, my daughter told me that a longtime friend had asked her last November if I actually intended to undergo chemotherapy. I hadn’t heard about this inquiry, and the question stunned me. I’ve been my daughters’ sole parent for a decade now; even in the worst of these cancer nights and days, I remain foremost a mother, unable to relinquish my watchful eye. After diagnosis, it was immediately clear that the cancer was rapidly growing; without some kind of treatment I would die that winter. The lymphoma I have responds well to chemo. My other option, perhaps, was to seek an alternative treatment — where, for how much, and with what likelihood of success — was dubious at best. In my fifties, I was determined to live. My oncologist was clear that the chemo would shove me to the edge of demise. He told me, You are curable. So, in a rare action of trust, I stretched out my arms and said, Infuse me.

As the cancer was so advanced, I suffered numerous complications from the chemo, which resulted in all the hospital stays I’ve referred to in this blog — nearly a dozen — weeks and and weeks and weeks this winter.

Now, April, Easter rising tomorrow, I’m drinking a friend’s homegrown chamomile tea this morning at my kitchen table, watching the small rain feed spring’s green, alive, in remission.

From the get-go, too, I determined not to burrow into the rathole of despair that I’ve seen disease wreck upon individuals and spread to families. This recent ER visit, however, forced me to the crying day. I wept before the kind nurses, the warm hematologist with her sparkly hair, the PA who insisted I not leave even as I connived deals and plans for discharge. I did not cry before the elder hematologist, who had certainly been practicing medicine for most of my life. I said, yes, yes, I understand. And then I wiped my tears with my thumb when he left.

By the late hour when my daughter had left, and I was alone again in the darkened ER room, I’d taken stock of what I’d crammed in my backpack: two books, my laptop and charger, a handful of underwear, my notebook. I’d forgotten my knitting, which was unfortunate. The nightshift nurse brought me water and those eternal saltines. She was a traveler and had last worked in Iowa.

Much later the next night, two nurses wheeled me through the dim and empty hospital halls to another room. Of all the experiences I’ve had at Dartmouth-Hitchcock, I’ve oddly enjoyed these late night journeys through this huge building. So many stories here, so much living and dying, so much richness. By then, I’d finished with my weeping, joined the world again, all of us, doing what we’re doing.

A driving spring rain
gliding, wending through the trees
speaks in little drops

~ Bashō

An umbrella walks past…

File this week under “the best-laid plans of mice and men go oft astray,” or, just because I desire something has no factual bearing on reality. (Is there a message for national politics here?)

My sixth and infusion has been delayed, as I’m admitted, again, at Dartmouth-Hitchcock. Two days before that scheduled infusion, I woke around 11 at night and phoned my older daughter who was just getting into bed. I said, “You’ll have to take me back to Dartmouth again.”

In a thick fog, she drove my mother’s blue Subaru down the interstate along the wide river, with sparse traffic and scant words from me. In the ER, late, late, we’re taken into a room, and the usual questions and IV and meds began. The nurse remembered me from my previous visits. In a rocking glider, my daughter slept a bit while I wondered at the light’s hue: amber, or tinged with orange, like heating lamp mixed with a gentle reading light.

Eventually, awake for over 24 hours, my daughter heads home to sleep. My oncologist appears and reassures me. “You’re getting there. A few days later, but getting there.” Our conversation drifts into where I’m heading in this new phase of disease – recovery, oh say that word again, recovery. What will this mean for me, and how will my life change? We talk a little about trust, and he mentions that, once trust is broken, it’s nearly impossible to mend that damage, a fine thing ruined.

So here I am, in yet another bend of this journey, learning patience, learning something more along the tenor of faith, that whatever is not within my sphere of influence is not mine to alter, such as these days here.

April. My younger daughter brings me blooming hyacinths and bulbs in a glass vase. The doctors talk with me about Donna Tartt’s The Goldfinch, and if the federal funding for Vermont’s interlibrary loan system is jeopardized. I tug at the strings of normalcy coming my way: a nurse’s trip to Des Moines a few springs ago and the city’s tulip beds; a friend’s email about dropping a car at airport for her husband; another friend reads Mary Oliver and sends me recordings; will my cat sitter eat whatever I’ve left in the fridge? Small things that stitch our lives together.

Spring rain:

telling stories,

a straw coat and umbrella walk past

~ Yosa Buson

Backaches and all.

Snow returns to Vermont; I remember an April 1st years ago when the snow fell so mightily our sugarhouse was hidden. I worried our toddler might get lost in the drifts.

These (early spring) afternoons, I walk around my garden where last autumn’s sunflower stalks still stand. The robins, those cheery birds, cluster. Redwing blackbirds sing joyously.

I’m nearly at my last chemo session – yes, counting down day by day, my simple math calculations and not-so-simple life. Mornings, I pull myself together to work; afternoons, I lie on the couch with my cat and read. The town library orders me interlibrary books. Recently, Blue, an illustrated memoir of St. Bart’s that I read in a few hours, a sojourn into a Caribbean vacation with a sweet family. I will be traveling nowhere outside the country, anytime soon, although I dream…

Where I am now is different terrain. My house has sheltered me (and my family) so warmly and kindly during this winter of disease. Now, I see where our house needs tending – paint on the barn, boards hammered back on the porch where the ice crashed. Every spring and summer, too, I plant more in the gardens, cultivating good living for birds and pollinators, not necessarily the woodchucks who come, unbidden. There will be no wars on my patch of hillside.

The bigger work for me now is healing; how happily I’ll shed medical appointments, the world of sickness, and savor my long walks again. My oncologist told me last fall that someday I’d forget I ever had lymphoma, and I’d forget him, too. Maybe someday if dementia drills into me (many many years from now). I would need to live a long long life if I were to forget this year.

In these winter months of cancer suffering, I’ve longed for many things, but prominent among these desires is to imbue this cancer with meaning. So now, as I’m beginning to contemplate my next steps, the spring and recovery phase, I’m determined to not slip into old habits or careless living. I mean nothing sentimental about this, as if plastering a gratitude sticker on my life will fix up my world.

Which way this will go is yet to be determined. Certainly, planting more perennials.

Stacking wood today

I thought how much I loved this life,

Backaches and all.

~ John Straley