Map Revision

Fickle May, windy and wet, sweating and chilly, the green urgently shoving through last year’s dead brown. Every day, a different pleasure: marsh marigold blooming in bracken water, violets sprinkled under the apple trees with their tiny tufts of leaves.

Nights and early mornings, I lie on the couch and read Arthur Frank’s The Wounded Storyteller, “The voices that speak to us at particular moments in our lives, especially during transitions or crises, imprint themselves with a force that later voices never quite displace.”

Oh, the imprint of life.

A year ago, in yet another Dartmouth-Hitchcock hospital room—fourth floor, the best of the ten rooms where I stayed that winter, with a sunset view of the mountains and such a kind nursing staff—the surgeons stopped in yet again, the pack of them, head surgeon to med students. Listening, I stared through the window at the walking path that wraps around the medical complex. I supposed I could keep arguing against surgery, get someone to push me in a wheelchair to the elevator, hobble outside, and then return via the Emergency Entry. My daughters and I were pretty darn familiar with that entry by then. There was no other option; I said, okay, signed the consent, phoned my siblings and pleaded for fresh horses to arrive, to get me through.

On this dawn-rosy May morning, no fresh horses needed today. A year ago, my daughters arrived for Mother’s Day, and walked me outside beneath the just-opening apple blossoms. We visited the courtyard gardens that we had stared at through the winter of chemotherapy, snow blowing. The cherry trees were profusions of pink. I salvaged books from free carts, novels and histories that I would stock up, like pain meds, to ferry me through the next round of recovery.

This morning, the daylight flooding in, a year later, a wall’s been removed in my kitchen. The dishes and baking pans are piled in cardboard boxes, a sole knife and cutting board in my sink. Will this chaos keep me in the world? Will messiness root me here? Or is this simply my lifelong patterns of creation-destruction-creation, life’s paddlewheel, that I lean on now? Er, maybe that I’ve always stood upon?

“Stories have to repair the damage that illness has done to the ill person’s sense of where she is in life, and where she may be going. Stories are a way of redrawing maps and finding new destinations.” — Arthur Frank

Risking Delight with the Lion

Precisely a year ago, to the day, Isele Magazine published my essay “Red Devil, Survivor Herself.” I had written all through the godawful cancer treatments, AKA chemotherapy, and publishing this essay marked my tenacious determination to remain among the living—and to remain a fierce writer, too.

Over the summer and autumn, “Red Devil” morphed into a manuscript-in-process. Recently, three more chapters were picked up. The kind folks at Isele Magazine published “Risking Delight with the Lion.” The following two will be published in different journals later this spring.

Here’s the opening of “Risking Delight.”

In my winter of chemotherapy, I woke at night, quivering. Where was I? What was happening? Gasping, I reminded myself that I was in bed, I was okay, that whatever demons had sought me in sleep had been banished by my waking. I didn’t blink my eyes open into peace. My breathing never eased into contentment.

Cancer-and-chemotherapy is a path of suffering, an involuntary hairshirt. The first morning I met my oncologist Dr. Valera in that Dartmouth-Hitchcock hospital room, I was surfacing, bleary and exhausted after an emergency admission and an exploratory surgery that verged on plunging me into a sedated coma. My daughters had been summoned through a snowstorm. What remained of my vitality was vanishing. Me or the lymphoma would triumph. There was no middle ground. Yet, that first morning, Valera assured me, “I can cure you.” Not cocky, not boastful, merely stripped down to facts: the lay of my body and disease, his skill and treatment course.

I clutched his words desperately, but I never repeated aloud, “This physician makes a claim that I will live.”

What was the levy I would pay for remission?…

Last… with the 2050: Vermonters Take a Swipe at the Future project, I’ll be reading at the Tenney Memorial Library in Newbury, Vermont, this Saturday, 4 p.m. Come!

“In fear of death we lose out in life.”

Yesterday, an acquaintance I’ve known for years and who I like and admire, asked me how I am, and then remarked calmly, I don’t think you ever get out of stage 4 cancer. He’s a man of clear mind who’s now into his tenth decade in this life, and his words were not unkind and not unfeeling: the reverse, I reckon.

But there are things in our lives we never leave. My mother, at the end of her long life, returned to her childhood. My siblings and I knew little about her childhood. We never knew her father who died a few months after I was born. As she approached her death, she returned to his memory, trying to unknot whatever painfulness she had held her whole life.

How easy to slip down these holes of despair. But the rope of the past is multi-stranded. My mother both loved and hated my sauciness, which surely originated from her. In my garden, still frost-cloaked each April morning, I planted Russian sage last July when I was healing slowly, day by each day, from the brutality of surgery and cancer. Will these long-stemmed beauties return this year? Will the woodchucks devour the sunflowers? Will the roses bloom profusely and claw my fingertips with their thorns? My little satchel of possibilities.

In fear of death we lose out in life. We stuff an owl with arsenic and leave it totally
perfectly not alive in the study, like something coveted privately by Calypso, like the
greatest line ever written, embalmed with iron, staring down at us from the filing
cabinet, never read aloud. What makes us despair is the impermanence of beauty. — Bianca Stone

The die is cast?

Writing notes for a reading for Call It Madness, I scrawl in my notebook that this novel is jammed with secrets. Avah Lavoie, protagonist, stashes secrets of theft of longing, and she’s surrounded by secret-keepers, too. Early in the novel, I offer readers two clues. These questions underpin my life, too. No surprise.

The first that’s slipped into the narrative is the story of beavers in New England, how these creatures and their laborious dams once flooded New England, rendering that birch bark canoe a viable form of transportation. When the craze for beaver hats set in, the beavers were trapped nearly to extinction, drying up the land. The story of the past shapes the terrain where we live and how we see the world.

The second is Caesar’s line Alea iacta est — the die is cast. The machination of fate. It’s a question that’s arced through my life since I was a teenager, immersed in Russian novels. Now, from my Vermont house, in the tender dawn, pearly crescent moon hanging low in the horizon, the stars snuffing out as light grows, the robins striking up their day’s singing, this line returns to me. Is fate sealed for this country where, by circumstance, I live, a madman as a leader, intent to wreck destruction and pain, war crimes? Around me, the questions reverberates through everyone: how to live?

Sunday morning, the earth after this fierce winter softening, the daffodils pushing up through black earth, the delicate snowdrops pearly, persistent, the strength of these slender stalks a strain of secret, too.

“If, then, I were asked for the most important advice I could give, that which I considered to be the most useful to the men of our century, I should simply say: in the name of God, stop a moment, cease your work, look around you.” — Leo Tolstoy

Thawing earth, tempered heart.

My neighbor and I kvetch about what the spring thaw reveals: dogshit and stove ashes running into pools of black ink. The mud is a housekeeper’s bane and a gardener’s promise. In the rain, we swap stories of illness and books and parenting. These days, I keep T. S. Eliot’s words in my pocket.

April is the cruellest month, breeding

Lilacs out of the dead land, mixing

Memory and desire, stirring

Dull roots with spring rain.

Inexorably (and grateful, so grateful to be here, writing), my days unfold towards that first-year mark of emerging from chemo, from the brutality of drugs that both scorched and healed my body. In rickety last summer, I started yoga classes, at first hardly able to climb the stairs to the third floor with its windows that overlook Main Street and the Village Diner and the blinking yellow light intersection. In this mindful class, those ER visits appear again, drift through my thinking, vanish. In my fifties, now, like anyone, I’ve lived through the gamut. The most fearful times of my life, I was often quiet, utterly focused, like the terrifying afternoon when my youngest baby had an allergic reaction and a stranger rushed us to the ER.

Enduring the chemo was like that, too, so many months of cowering beneath a rushing train, nearly always on some variation of the pain scale, intent on the single goal of survival. I longed for the everyday world. In this were small bright gifts. My daughter’s friend would sometimes raid my post office box and bring me books and letters and medical bills, news of the outside world, literary fodder.

Disease is a strict teacher, with lessons of endurance and patience, of non-negotiable acceptance. My world constricted so often, breathing through pain to survive a little more, a little longer. One afternoon in April, my daughters walked me outside the hospital. We sat on a bench beneath a profusely blossoming apple tree. Through the white-petaled flowers with their ruby hearts, the blue sky. We sat and talked. For ten minutes? Half an hour? What does it matter? The limitless spring sky, the infinite mystery.

April this year, not otherwise
   Than April of a year ago,
Is full of whispers, full of sighs,
   Of dazzling mud and dingy snow;
   Hepaticas that pleased you so
Are here again, and butterflies. ~ Edna St. Vincent Millay

Life can only be understood backwards…

Kierkegaard wrote that famous line, “Life can only be understood backwards; but it must be lived forwards.” This is the story of my life, and probably of yours, too. I’m a few weeks shy of a year away from the last chemo session. During those hours of infusion, I dozed, watching cardinals and house wrens through the cancer center window. That night, I slept profoundly, believing done, done, not yet realizing an excruciating surgery would lear up unavoidably a month later, that I would phone my siblings and beg for their arrival, that I needed fresh horses, the calvary’s arrival, that the end to these months of cancer treatment seemed impossible.

A year later, I’m still here, living forward, still waking before dawn to reckon what kind of light might kindle the day. A year ago, I could hardly lift my laptop. Now, I text a friend to borrow a belt sander. I am determined to lean my shoulders and back into revitalizing this old wooden floor that had been hidden for years beneath vinyl.

Cancer reshaped me in multiple ways, diluted my rage, cushioned my prickliness, whetted my fierceness to entertain no truck with catty foolishness. Disease fed my solitude and forced me to reach out and grasp hands. And now a sander.

A friend recorded Vermont’s poet laureate Bianca Stone speaking about Robert Frost. The recording is up for a few weeks on the local radio station, WGDR, on the March 22 Bon Mot show; it will feed your heart.

And one of my favorite Frost poems:

Into My Own

One of my wishes is that those dark trees,
So old and firm they scarcely show the breeze,
Were not, as ’twere, the merest mask of gloom,
But stretched away unto the edge of doom. 

I should not be withheld but that some day
Into their vastness I should steal away,
Fearless of ever finding open land,
Or highway where the slow wheel pours the sand.

I do not see why I should e’er turn back,
Or those should not set forth upon my track
To overtake me, who should miss me here
And long to know if still I held them dear.

They would not find me changed from him they knew—
Only more sure of all I thought was true.