Disease as Teacher.

About a year ago, a friend asked to borrow knitting needles, a request I almost certainly ignored as I could hardly walk up the stairs in my house, and forget the effort of opening the closet door and searching through my needles. A year ago, my family moved my bed downstairs, and I wondered, Well, is that? Am I now confined to one floor like an old woman? I was not, thankfully.

Half a year out from chemo and surgery, my family moved my bed back upstairs. The first morning I wake, I stand at the window looking down at the mock orange planted decades ago. In June, this giant bush is covered with small white blossoms, but in November, the bush is mostly sticks, save for a few withered leaves.

Standing there staring down, I felt suffused with profound grief. Almost immediately, I chastised myself. Why grieve when I survived a terrible illness? When this might have easily gone otherwise? And yet, grief.

Nearing the holidays, I think often of my mother who died not so long ago. She and I had years ago separated our lives for reasons both silly and profound. Only at the end of her life did I begin to have empathy for her and see her not merely as my mother but a woman in her own right. So that morning, thinking of her, my grief is for her absence, for what might have been between her and my daughters and myself. So many years I invited her to holiday meals, and all those years, she refused to join us. How I would love to invite her this year. Surviving cancer (thus far) broke me in so many ways, shoved me right up against the fragility of the world, revealed my own meager strength, but it also allowed me to grieve the loss upon loss that is not endemic to me but woven integrally through our mortal lives. Cancer empowered me to hold that grief without rage, to acknowledge simply what is.

But sadness, of course, is one variation of the complex symphony of our lives. Yesterday, walking along a hillside dirt road in the November sunlight, hat pulled off my head and in my hand, eyes on the spine of the Green Mountains in the distance freshly covered with snow, pure joy suffused me at simply being in the world. Six months ago, my companion had walked with me from my house to Main Street. It wasn’t at all certain to me that I could manage that short walk there and back. Now, the two of us moved quickly through the world, talking poetry and plans. How remarkable is that?

What if we embraced the messy, evolving, surprising, out-of-control happening that is life and reckoned with its proximity and relationship to death? What if, instead of being afraid of even talking about death, we saw our lives in some ways as preparation for it? What if we were taught to ponder it and reflect on it and talk about it and enter it and rehearse it and try it on? What if our lives were precious only up to a point? What if we held them loosely and understood that there were no guarantees? So that when you got sick you weren’t a stage but in a process? And cancer, just like having your heart broken, or getting a new job, or going to school, were a teacher? — Eve Ensler

Finding Jesus with the star sunglasses…

Home again and somewhat shocked to see an ice floe leering off my back roof, not exactly the size of A23a Iceberg, but approximating it….

I’m under strict orders to drink broth, eat saltines, lie on the couch and read — the last two I’ve been perfecting for months now. As for the rest of the order (this is the only thing you should be doing, Brett), I’ve been quietly breaking rules for years. Now, intimate with cancer and my mortality, I push myself to obey the orders, stick with the plan, follow the course precisely.

The winter thaws. The iceberg chips, shifts. I step outside and lean against my house in my down jacket that is now limp and beaten down, a sad thing that, this quarantined winter, I’ve used so little. How will my thousand words a day fit into these orders? A grant deadline looms. When will I put on my clean shoes and that linen sweater I knitted and return to work? A cardinal perches on the railing.

In those 48 hours I spent in the Dartmouth ER, in a beige isolation room, an upbeat nurse with amazing eyelashes occasionally stopped in to cheer me and whoever of my daughters was there. On the TV, which we never turned on, she pointed out a tiny orange plastic duck, and told us someone had placed small figurines all over the hospital. “I found Jesus,” she said. “I know that’s weird, to go around a hospital saying I’ve found the Man, but really…” She reached in her pocket and pulled out an inch-high plastic Jesus in a long robe, black curls, gold star sunglasses. He smiled so widely his teeth gleamed.

In that same room, I spied a second duck, brought the ducks home with me and lined them up on the bathroom mirror beside the wooden blue elephant from the Metropolitan Museum my daughter gave me. Two tiny things that arrived in my pocket, after a week of manifold things, after months of many manifold more. All day, it will rain, the warmth softening that iceberg on my roof, falling on the deck and breaking the wood, or not. If it’s broken, we’ll repair it this summer. If not, we’ll move on to the next thing.

And utterly seasonally inappropriate, here’s a Galway Kinnell poem I’ve been loving:

Blackberry Eating

I love to go out in late September
among the fat, overripe, icy, black blackberries
to eat blackberries for breakfast,
the stalks very prickly, a penalty
they earn for knowing the black art
of blackberry-making; and as I stand among them
lifting the stalks to my mouth, the ripest berries
fall almost unbidden to my tongue,
as words sometimes do, certain peculiar words
like strengths or squinched,
many-lettered, one-syllabled lumps,
which I squeeze, squinch open, and splurge well
in the silent, startled, icy, black language
of blackberry-eating in late September.

Unsurpassable February.

For days, the forecast has trumpeted news of impending snow this weekend; still, sunlight floods into our kitchen this morning. Sure, it’s a few degrees above zero, nothing to sneeze at, but the icicles gleam, skinny stalactites, proof of this week’s warming. A crimson cardinal perches on the feeder.

We are in deep midwinter, the annual mark of collective cabin fever, of generalized bitching, of snow pile comparisons and, in precise detail, what is now hidden from view. It’s the season for skiing, for chocolate, for mooning over seed catalogs.

In my own cancer world, I mark the merge of days and nights in my own way, writing my thousand words a day (sometimes more, sometimes not at all), as my own shepherd’s crook to right my crooked self. In the afternoons, spent, I read and read, returning to that great pleasure of my youth. Around me, my family shifts and jostles, their own lives crammed full with their living, with jobs and classes and loves or longed-for loves. My daughters call me with stories about a grapefruit drink that I vow to drink this July and August, over smashed ice, my bare feet on the grass or maybe a sandy shore of Lake Champlain. It’s the time of year when we long for rain drops on our cheeks and clotting in our eyelashes. But February rain holds ice and sleet, not the green wash of spring, the scent of soaked earth, the tang of emerging garlic.

Every day, I talk with my old father in New Mexico. He asks, Are you sticking to the plan?

I am, I assure him, holding to the course of what the medical realm prescribes, meds and applesauce and so much water — but the here’s the refreshing, liberating, unbelievable thing: there’s no bones with anyone at all in the cancer world that this is a hard dirty blow. So seize this opportunity, turn your life inside out, remake it anew. Make no excuses. Take.

Driving, again driving in the dark to Dartmouth, the full moon hung over our shoulders the entire journey, a creamy light, brilliant on new snow, unsurpassable.

And here’s a poem from Ginger Andrews I used to read in my shut-in mothering-toddler days….

The Cure

Lying around all day
with some strange new deep blue
weekend funk, I’m not really asleep
when my sister calls
to say she’s just hung up
from talking with Aunt Bertha
who is 89 and ill but managing
to take care of Uncle Frank
who is completely bed ridden.
Aunt Bert says
it’s snowing there in Arkansas,
on Catfish Lane, and she hasn’t been
able to walk out to their mailbox.
She’s been suffering
from a bad case of the mulleygrubs.
The cure for the mulleygrubs,
she tells my sister,
is to get up and bake a cake.
If that doesn’t do it, put on a red dress.

In the cracks around kindness.

Thaw, on this New Year’s Day, hovering near freezing, my neighbor’s yard under her great pines exposed to soggy grass, the fields on the hillside across the village bare as late April.

I pull on my coat and boots and stand on my porch. The tree branches are festooned with droplets. Cold will press in again this week.

Wednesday morning, holiday, my scrawled list penciled on a post-it on my kitchen table, waiting. I perch on the covered sand bucket and sip the coffee, my hands wrapped around the mug. My memory wanders back to the Maine coast where we spread my mother’s ashes last June. My mother loved domestic spaces. She would have been enchanted by the colored lights my kids strung over my barn, along the porch roof over my head. Likewise, in my house, she would have admired our tree with the red star topper, the room illuminated with tiny lights. Nearly housebound with cancer recovery, my household has been blessed with gifts of candles, savory meals, foil-wrapped chocolates, fragrant rose oil from Bulgaria. All this, too, would have intrigued my mother.

My mother loved the wild, too, for much of her life quick to pack up the car and head for the open road.

In Maine, we parked near the shore. The sweetness of rugosa roses buoyed along the breeze’s brine. In the curving, layered landscape of rock and the rhythmic crashing pound of the ocean like the planet’s beating heat, we returned her remains to the immense wild, the mysterious territory where she had, after all, emerged from.

A crossing over.

This second memory, too. Later that summer, visiting my old father in New Mexico, my young woman daughter and her friend fried eggs and buttered toast for breakfast. In their strappy sundresses, they sat at the round oak table, sipping coffee. The friend had never visited New Mexico; her eyes gleamed. My father gave them his credit card and told them to eat lunch in downtown Santa Fe, in the courtyard which had been a family compound, 200 years and more ago. Later, the girls returned with leftover enchiladas and stories of flowering trumpet vines and singing birds. We must go into the beautiful mountains.

Yesterday, this daughter walked me around the high school, the beginnings of my strength returning. In the hidden back, a path leads into the woods. She held my hand, admonished, “Not yet.”

On this misty, rainy New Year’s morning, a prayer to cultivate patience and mercy for these interwoven journeys…

Before you know what kindness really is
you must lose things,
feel the future dissolve in a moment
like salt in a weakened broth.
What you held in your hand,
what you counted and carefully saved,
all this must go…

Naomi Shihab Nye

Lantern Light.

My immense thanks for so much kindness and light sent my way this week…. It’s meant the world to me.

When my daughters were in a sweet little Waldorf nursery school, around this time every year the children made lanterns from canning jars covered with colored tissue paper. The whole school gathered for a vegetable stone soup and then set out for a walk with the lanterns. This is rural Vermont, remember; the nursery school was surrounded by forest and the deep night, and parents carried lighters and matches to relight anyone’s lantern that was snuffed out. In the dark, stumbling a bit, we walked, singing.

Martinmas. I was tugged right into the Waldorf world with its heady folklore and mummers plays, the stories within stories, my natural bent of mind.

A week into the cancer world, veritable novice, walking on November 11, I was thinking of all these powerful layers — Martinmas and Armistice Day and Veterans Day (after WWII and the Korean War) — and the hidden interconnectedness of so many things, String Theory, the magical enchantment of books with stories that seem disconnected and then — whoosh! — are magically revealed at the end.

Maybe this is only my own way of thinking of things, but this uninvited and unwanted cancer that has now joined my body and story could hardly be random. Here I am, on the edge of a journey of indeterminate length, still looking to put these hard pieces together.

And for November, with her lovely gloaming light, a few lines from Adrienne Rich:

… You’re what the autumn knew would happen
after the last collapse
of primary color
once the last absolutes were torn to pieces
you could begin

How you broke open, what sheathed you
until this moment…

A Handshake and a Promise.

I leave dinner with neighbors and friends and walk home, down through the village. It’s late enough that the few restaurants in town are closing down, a few lingerers at the bars while the waitstaff wipes down the tables, doubtlessly thinking of their own homes and nights ahead.

Knowing I would savor this walk, I brought my hat and a coat, and the night is warm enough. I’d been offered a ride — “it’s dark!” — but me who is afraid of so many things (rushing semis, rats) has no fear of this autumn dark, this small town. I pass no one, not even a dog walker.

End of October, and I labor through the daily chores, now shoveling ashes from the wood stove, putting away the summer’s chairs and garden tools. My daughter phones with a homework question. Over us, the ineffable holiness of the passing of both of my daughters’ grandmothers this year, the old women who had distanced themselves from their granddaughters. What will this mean for my young women? At dinner, whisperings about the election. Which way will this split?

Just beyond the village, a U-Haul idles, lights on. As I walk nearer, I squint in the brightness. U-Haul, those rental trucks that have appeared intermittently in my life. The last time was that sleety winter day when a couple loaded up barrels of syrup from our sugarhouse driveway. I was in a desperate time in my life then, selling what I could to pull up stakes with my daughters and light out for new territory. I took a chance on this couple, watching them head down the slushy road with our liquid gold with nothing more than a handshake and a promise between us.

As I walk by, the U-Haul driver doesn’t look up, reading his phone, maybe a map, maybe a love note. I keep walking. As for that couple, the handshake and promise were gold. A week later, the check arrived in the mail.