Losing hair, blue dawn, foreign objects in flesh.

Before dawn, brushing my hair I sing On the road again, just can’t wait to get on the road again, that old Willy Nelson song my mother loved. In the kitchen, making coffee, my daughter calls, Wait? You know that song? We played it everyday on our road trip last summer.

A thing to savor in this cancer: how my daughters and I discover these tiny things about each other.

My youngest cut the snarls from my hair that lingered from that hospital stay, when I couldn’t raise my arm to brush my long hair. Now, hanks of my hair slip out in my brush.

Outside, I stand for a moment, the waning moon hung over the neighbors’ roof, the emerging dawn a river-stone blue. A thaw’s set in, and the air is redolent with melting snow, a hint of loosening compost and soil. Raindrops hang from the three apple trees I planted.

We drive through the village, the coffee shop lit up where I’ve spent so many hours writing and talking, a young woman sweeping at the door. Colored lights string through the trees and over store windows. Out of town, day warms over farm fields and forests.

At the hospital, blood’s drawn for my chemo course this week. In my rudimentary cancer thinking, while doing the darnedest I can to forget about the orange fluids that will enter my body, I reckon that this week’s treatment means one third of the way through. If I can endure a third, I can endure half. If I can endure half, I can persevere to the finish. Talking with my daughter about December monochrome, I silently counsel myself to knock off my silly math. I’ve factored in no variables, and the variables are inviolate.

Before we leave, the nurse shows me a model of a port that may or may not be inserted in my chest. I hold the pad for needles, finger the plastic tube as she explains how it will lie under my chest. At the end, in the shape of a calla lily, is the opening that will drip the chemo beside my heart. The whole apparatus seems enormous to me, that plastic calla lily wider than my small finger. I hand it back to her. In the end, with the Good Doctor, how much of this will be my decision, and how much will be wisest course forward? In this age of truth/untruth, facts are powerful. I thank her, and we leave.

It’s a pleasure to be outside again, on this tiny road trip, my daughter at the wheel, drinking coffee. The fields and mountains and sky are layered quilt batting: blue and pearl and silver. Around the trees, rain’s pushed the snow away from the trunks, opening the earth again.

From Lauren Markham’s A Map of Future Ruins:

We don’t live steadily toward epiphany; our truest stories move back and forth in time, in space, in memory. Life is a mosaic, not a line.

“This Infuriatingly Intricate Web”

A well-known local author mentioned at the most recent of his readings I attended that he’s writing a book about koans – a book I can’t wait to read, because isn’t life just a series of unfolding koans? Have I ever actually solved one? Some days, it seems to me, not likely.

My daughter spied a V of geese winging south yesterday, the first we’ve seen of this season, but one among countless Vs we’ve watched since she was a tiny girl, her arm crooked around my neck. Fall is familiar, graciously beautiful, infinitely sad, followed by the brilliant beauty of sparse winter: the same Vermont story, year after year, and yet I’m always surprised by the September mornings’ cool mist, the cucumber vines shriveling, all done with this life.

Cooking dinner yesterday, I read an article in the New Yorker about that terrible disease, cancer. Innocuously enough, the article begins with mollusks in Lake Michigan, journeys through seed and soil, and ends with a koan:

… as ambitious cancer researchers study soil as well as seed, one sees the beginnings of a new approach. It would return us to the true meaning of “holistic”: to take the body, the organism, its anatomy, its physiology—this infuriatingly intricate web—as a whole. Such an approach would help us understand the phenomenon in all its vexing diversity; it would help us understand when you have cancer and when cancer has you. It would encourage doctors to ask not just what you have but what you are.

– Siddhartha Mukherjee

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Mason-Dixon

The summer my nephew was 10, my daughters and I spent a long piece of the summer with his family in Charlottesville, Virginia. We were visiting because of family illness, and so it was me and the kids and a palpable uncertainty and unhappiness, and sweltering days and nights – and, since we are this kind of family, we laughed a lot, even at things that may not have been hugely funny. The four kids and myself explored the surrounding woods and the downtown, and my nephew – a boy hungry for history and stories – offered a near nonstop commentary about his hometown’s past. My own daughters, who’ve lived in woodsy Vermont all their lives, were mystified by the sprawling historic mansions, the prolific Civil War statues, the presence of the past.

In one long ramble, my nephew mentioned the War of Northern Aggression –  a name never mentioned in my New Hampshire public schooling. He was stunned I’d never heard the term.

Really? he asked.

Really. Like that, I was ashamed, suddenly seeing this sticky and different place more foreign and infinitely more complex than I’d imagined. The statues, the big houses, my nephew’s intricate stories were but keyholes, tiny slits into a titanic past.

And one day we must ask the question, “Why are there forty million poor people in America?” And when you begin to ask that question, you are raising questions about the economic system, about a broader distribution of wealth. When you ask that question, you begin to question the capitalistic economy.

– Martin Luther King, Letter From Birmingham Jail, 1963

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