Three things of varying importance…

Because I’m writing from Vermont, first, the weather: cheek-slashing cold, furious wind.

Second, back at Dartmouth these past few days for a consult and an infusion. Checking in, my insurance card was denied. Denied because it’s January and the new year wasn’t set correctly, or denied because some system is broken? I imagine these numerous co-pays, from ninety-cents to $750, piling up in my electronic portal. I’ll kick that to Monday, begin to straighten that out then…

Halfway through my treatments, the Good Doctor gives me the heads up about what’s to come, including the shift from what I’m calling Cancer Land back to the Everyday World. Although I’m sure he hears this repeatedly, I say how otherworldly is this cancer journey. Rarefied isn’t precisely the word I’m looking for, as so much of disease isn’t lofty or grandiose but mundane and sometimes miserable. But the journey is like nothing else I’ve undertaken, laced through at times with impending death, elevating the stakes to the utter center point of what matters. There’s nothing trivial here.

Third (and certainly not last), I’m so grateful for the lovely mail in my P.O. Box – cards and books, seeds and poems, such as this one by Danusha Laméris.

Insha’Allah

I don’t know when it slipped into my speech

that soft word meaning, “if God wills it.”

… How lightly we learn to hold hope,

as if it were an animal that could turn around

and bite your hand. And still we carry it

the way a mother would, carefully,

from one day to the next.

Refusal that the World is Random.

Cancer or not, the everyday world proceeds. I renegotiate the dullard car insurance (why would I pay to insure myself when I’m not driving?). This morning, the cat, seeking the milk jug on the counter, leaps on the kibble container I didn’t properly close. Kibble mounds over the kitchen floor. For the briefest moment, both cats stare, unable to process their astounding luck: a landslide of food.

Among minor domestic changes which involved a ridiculous amount of discussion: we swapped one washing machine for another. I posted the old one (a workhorse from the previous century) for free on the local digital bulletin board. While I was heating up the pot roast my friend dropped off, a young man I’ve known since he before he lost his milk teeth asked if the washing machine was available.

He arrived not long afterwards. We stood in the kitchen, talking about infected wisdom teeth (his, removed) and cancer (mine, in process of removal) and the medical system and capitalism. He asked if I knew what gave me the cancer, what empowered one gene to divide and divide again and again.

I have my theories, my guesses about this answer, nothing hard and set chiseled into stone. But isn’t it often the way that a sudden shift in events is triggered by multiple strands of actions, working seen or unseen? Leaning against the door, rose-cheeked with cold, he posits that nothing happens without a reason, that the universe is never capricious. I set my wooden spoon on the counter.

Here’s a thing: two months — 60 days — into the cancer world, with two rushed ER visits and two dodges of the grave, two chemo sessions, a complete upheaval of my life, my family’s, my colleagues’ — I woke early one recent morning and realized cancer will be with me until I cross into the next realm. But likewise, what I’ve labored hardest and most tenaciously and (often) most joyously will be with me, too. Raising babies into women, writing books, sobriety, cutting off a troubled marriage and recreating my life. But aren’t we all that way? Shouldering along with us the stones of our lives we’ve chosen, and the rain that’s fallen from the heavens and soaked us, too?

Here’s a Vermont Public Radio interview with Vermont Almanac editors Dave Mance and Patrick White, about this unique books and the non-cliché Vermont world.

A few lines from Dave Mance’s preamble to a book packed with plenty more….

…. seek out things that are real and hard…. Gravitate towards things that are beautiful. Lean in to things you cannot understand…. Tell stories where trees are protagonists. Look at the lines on your palm and see that, like wood, your skin has grain.

❤️

In the night, snow. My youngest ventures downstairs from her second-floor lair and feeds the wood stove, asks if I’m still reading, and don’t I think I should be getting some sleep… Around my knees, the cats yawn at her, nestling into their cat-dreams for a winter’s sleep. Outside, the town plow rumbles up our road, backs around, beeping, and disappears into the falling snow.

2024, a year that’s meant so much to so many. In our house, the year my mother died, the year I almost died, too. The inside-out year of reversal. In these quiet December days, getting better, getting stronger, getting weaker, moving along that jagged zigzag towards health, I’ve been lucky to read and think, to be warm and tended, to savor small sweets. Games of gin rummy. Poems Jo reads in her clear strong voice and sends every day. Brad’s photos of wintry Lake Champlain, luminescent portals of ice and drooping snow and runny sunsets. For so many of you, some whom I know well and have gone in and out of the depths of friendship and family, and some whom I hardly know, the circle around me has made all the difference.

When I first knew I had cancer, an acquaintance who had survived breast cancer told me it was the loneliest experience of her life. Like anyone, I’m well-acquainted with loneliness, have battled this shackled companion through divorce and betrayal. Where now has fate sent me? Illness was a forbidding shore where I never wanted to land my kayak, bend down in the cold murky waters and hoist my flimsy craft to safety. But illness is our common terrain, and those who dwell here – through happenstance or vocation – welcomed me in with compassion. As The Good Doctor told me, We are all patients. More plainly, perhaps, we are all mortal, conjoined.

Wishing you all some radiance from Vermont, prettied up this early morning beneath a downy snowfall….

“The Verge”

Reason is a fine thing, but remember there are other ways
to live: by instinct or passion, or even,
maybe, by revelation. Try it. Come around again to the verge –
that place of about-to-open, near where we comprehend
and laugh and see. Why shouldn’t something marvelous
happen to you? Take even an occasion like this:
A man reading at night looked up at the window to find
a moose looking in, interested and unafraid
with quiet dark eyes. He reports he has never been the same;
he finds the ungainly and miraculous everywhere.
He said it started the next night in the empty window
as he watched his reflection looking right back through.
He said he saw his own beauty, how even in his same old face
the quiet eyes were curious and ready to be true.

– Annie Lighthart

December, Holy/Unholy/Holy Season

Anyone who lives in a northern climate must inevitably come to some reckoning with the descent into this month’s darkness, the steady whittling away of daylight at either end, noontime oftentimes scrubbed to a soapy haze.

To my surprise, this month began on an ascent for me, an elevator rise at the end of November, crammed into a silver metal box on a gurney with my weeping daughters and brother, and an anesthesiologist who might have drawn the short straw to collect the patient in the otherwise sleeping hospital. He was actually assured me he was a much better anesthesiologist than a gurney driver. Bring me back safely to these people, I pleaded.

Here at Dartmouth, I’m in a major medical facility (of which I’ll someday write much more). There’s no illusion that this is giant Health Care. Within this, my tiny 4’8″ body and the fraughtness of grave disease and uncertainty, and so so many patients. Yet all these interwoven days and nights, I’m surrounded by an arch of kindness, by skilled and unskilled staff who labor so patiently. I’m humbled by this secular holiness. The respect is repeated among colleagues here, aiding each other (and all us needy patients) with their own thank you, thank you as they work together.

A friend, driving home to Vermont from family Thanksgiving, leaves me Time of the Child by Niall Williams. Late into the night I read, taking these hours to relearn the slow joy of novel immersion. Sleep, sleep, I urge myself, and yet Williams’ world entrances me. Here’s line from this novel that an elderly Irish country doctor remembers from his doctor father: “The sick are ourselves, was a thing his father had said. When you stop understanding that, take your name off the wall and throw your bag in the river.

…. Whatever way this month transpires — for rise or for misery — and it’s all holy, isn’t it, this sacred and profane mixture of spirit and blood and bowel. The journey itself we take together is the gem.

Although I will say, I was ineffably joyous to return from that dismal night and see my curved-to-exhaustion people. After all, I am in the only one in our household who devours the cold leftover French fries with gusto. Why would we waste cold potatoes?

Thank you again, all.

Oatmeal Chat, Vultures.

Vermont sends its swiftwater team to North Carolina, repaying a favor when Vermont was in need. Word comes of similar terrain and climate causes, but far worse devastation. We send them our empathy, our skilled folks, certainly money, to their world broken apart….

In Vermont, these weeks have been tepid, the foliage gently rotating to gold, the sun warm in the afternoons. This year, the purple asters decorate the landscape everywhere, pallets of brushiness.

Thursday afternoon, I take my laptop to our picnic table, the bluejays creeping near, curious, my bent-over sunflowers in the garden shaking with feathered gleaners. I’m stuck on this notion of impermanence my father and sister and I have been kicking around, when we connect in our disparate parts of the country via our laptops. Autumn in Vermont personifies impermanence. Stepping out for firewood in the early morning, geese clack over my porch roof, getting their V formation together, out of here for warmer waters.

In the co-op, I round an aisle and meet an old friend filling a paper bag with oatmeal. You can imagine me, he tells me, standing at my back door, just staring at the mountainside. What perfection today. From there, our conversation quickly bends into small town democracy, how each of these three adjacent towns are different. We step to the aisle’s side and dig into the grittier details of a legal letter circulating on email. My friend, thinking like me, asks about motivation. Who’s desiring what? Why? What’s the intent, for what human footing?

Fascinating questions. Vermont Selectboard meetings are generally unfettered democracy. Anyone can show up and speak their piece, ask questions.

Later, I step outside with my pound of coffee and pound of butter. The turkey vultures are circling, swooping low over this section of highway and co-op and river. In my wool sweater, barefoot in Danskos, I stand watching for the longest time, the sun falling behind the hillside.

A passerby, walking in, glances up, too, and shudders. “Them. Those birds.”

I start up the hillside, under the gyrating vultures.

 Even  in Kyoto—
hearing the cuckoo’s cry—
 I long for Kyoto.

— Bashō

We are every experience we’ve ever had…

A sunny morning, I’m at a place I’ve never been before, a sizable post-and-beam gallery at the end of a road. A fenced vegetable and flower garden shines orange and gold. A marble bust smiles mysteriously.

I love this about Vermont: these unexpected pockets of mighty talent. The woman’s house is built around the gallery — a beauty of wood and stone and glass. We talk for a while, and we discover that her artist parents were from the same midwest area as my father — Detroit — and then she opens the gallery and takes me in. Let me say here: I’ve been around the block a few times, seen my share of museums and art; I’m also feeling this sunny morning like the dirt road my Subaru tires pounded into, driving uphill.

The gallery ceiling soars in a peak. The wooden space holds the owner’s and her deceased parents’ work. She allows me walk through the metal sculptures wordlessly. Then I stand beside an oil portrait of a woman wearing a black and red dress that reminds me of a velvet blouse I bought for a friend, many years ago, when she graduated from college. The woman in the painting rests her chin on her fist.

The owner looks at me. “It’s always the females who are drawn to her.”

“She’s me.” Woman of a thousand and one sleepless nights, bread baker, hearth tender, the woman who swam under the luscious full harvest moon. Woman hard as these back roads, fragile as coreopsis.

We walk upstairs and finish the tour. Before I leave, though, I stand again before this portrait, a long soulful moment. “Gracious,” I say, “gracious.”

“…we are everything, every experience we’ve ever had, and in some of us, a lot of it translates and makes patterns, poems. But, my God, we don’t even began to touch upon it. There’s an enormous amount, but we can touch such a little.” – Ruth Stone