The Scythe, the Past.

Twilight, 25 degrees yesterday, the temperature dropping, I’m walking back and forth by the town garage, a tumbling-down quonset hut beside the town’s towering sand pile. Such much winter yet to come. On the snowy road, I pace back and forth, watching the sky turn from blue towards black, the stars hidden behind the clouds, talking with my friend about family and politics. Listening, I remember the Christmas manicotti she brought me last year. My daughter and I ate that delicious meal at the kitchen table; through our glass doors, I watched the snow fall, wondering if I would live another year.

Another year is not a guarantee for a single one of us. Another lymphoma lesson. I’d woken that morning with that now-familiar fatigue, as though sandbags were tied to every bone in my bone, pulling me earthward. I fed the wood stove, drank coffee, rallied and did my writing, rallied again and pulled on my coat and boots and left the house.

Later, by chance, at an outdoor fair I see a woman I’ve known for many years, who was part of a trying time in my life when my daughters were young. She offers me a particular kindness, and I thank her, wondering what I’m supposed to say. She does not seem to expect the standard answer of all’s well, that’s over and done because of course any fool knows, once cancer has rooted profoundly in a body, the reaper’s scythe does not hide. By now, it’s not so much the scythe that frightens me, it’s the suffering to get there.

On my way home from the fair, I pull over and get out of my car. The sun shines brightly, but it’s freezing, and I’m shivering. I walk back down the dirt road that’s empty of everyone, not even a crow perched in a bare-branch maple. Far up the valley I see enormous white wind towers, the Lowell Mountain Project. To my left is a house where one of the leaders of a group that protested the towers now lives. When the tower project began, my then-husband joined that protest group. The experience broke my naive love affair with Vermont and my blind faith in that too-hard-used word community. Not so long after, the husband and I divorced. My life went on, and I became intimately familiar with my own fallibility, my own deep pockets of untrustworthiness. I devoted two years of my life to writing and publishing a book in atonement for my own callous actions. Which never changed the consequences but widened the story. Then, cancer — the plot turn.

Robert Frost, no stranger to suffering, famously wrote that everything he knew about life could be summed up in three words: it goes on. Standing alone on that roadside, I imagine myself as the mangiest cur, footsore, half-starved, near mad. Disease may yet be rising within me. If not now, perhaps soon, perhaps never. This hillside above the Black River valley will endure long beyond my bones and flesh, long beyond yours, too. The sun and wind cut into my eyes. Why do I refuse to remember my mittens? Rather than letting all this go, I stuff these stories back into my heart and trek back to the village. I’m not finished with any of this. I’m still following the strands of all these stories.

…. and last, Rick Agran of Bon Mot has kindly invited me to his radio show at 5 p.m. EST tonight…

Blue Winter.

In the early morning, I drive over the crest of Walden Heights into the rising sunlight that’s pink on the freshly fallen snow. Every late autumn, winter’s imminence lies in me — the dread of inarguable cold and shortened days, how my heavy boots clomp. I no longer read outside. And every year, the stellar beauty of this season astounds me.

Over coffee and raspberry jam, we talk writing and disease. My companion reminds me that a writer does not fix the world. A writer writes. By the time we part, the morning gleams a bluebird sky. When I wrote Unstitched, I followed a trail of stories about addiction, person to person, sometimes to frightening places, sometimes to people who amazed me with resiliency and courage. Likewise, this cancer that inhabited me and maybe yet does has both constricted and widened my world. A year after diagnosis, as my breakfast companion noted, is both terrifying and awesome. I’m keenly aware of the limits of my bones jointed together with tendon and muscle and flesh, and that my will which propels this body is mortal and fierce. This, too, that writing mirrors a tenor of that same blind faith, that creative work will wind its way to a reader in need, while salvaging my own limping soul.

At the other end of this day, blue twilight. As the night’s cold falls, the village lights switch on. In my thin coat, I note my longstanding neglect about mittens, my fists jammed in my pockets. Nonetheless, I keep walking, seduced by the beauty of the running river, its edges icing, the sky overhead an infinity.

Here,
I’m here—
The snow falling ~ Issa

“As you walk, you make your own road…”

[Traveler, your footprints]

By Antonia Machado 

Translated by Mary G. Berg and Dennis Maloney

Traveler, your footprints

are the only road, nothing else.

Traveler, there is no road;

you make your own path as you walk.

As you walk, you make your own road,

and when you look back

you see the path

you will never travel again.

Traveler, there is no road;

only a ship’s wake on the sea.

Trainwreck.

On the year anniversary of beginning chemotherapy, childishly I crab at my siblings. It’s a small thing—a bad internet connection, a request to make a phone call that might have taken 10 minutes—and I’m angry as all get-out, fury galloping in my blood. The common lingo is that chemo equals nausea, like a bad flu. That is not true, or was not true for me. Enduring chemo was like lying between two burning rails while a train sped over me. I held myself still as could be to survive that months-and-months-long train (how could something be so large?) rattling over me. Sure, there’s a few moments where the train slows, and you think maybe I’ll survive this, but steaming metal rushes right over your face, your mortality far closer than spitting distance. While the rest of the world is immersed in meetings or drinking wine in Spain or skiing, there you cringe, the pain so intense in your bone marrow that morphine means nothing.

In the first round, I had a common and horrific reaction to one of the drugs, rituximab, which stole my breath and shook my bones so hard the bed rattled. The room filled with people in scrubs. I did not know one person’s name. They kept talking to me, and I could not understand a single word. I was under that train, remember, the wheels hammering on tracks.

I never considered myself a warrior battling cancer. But my body was a war zone between two matched enemies: would the chemo quell the lymphoma, or would all of us go down together? A year later, in remission, I’m suffused with gratitude for my life, for so many people who got the train off me. And yet, a year later, there are days I’m still turning the pieces of my life over and over, wondering WTF? Like anyone, jab a shovel into the soil of my life, and the layers appear infinite. Twenty-two years ago, I left my crying four-year-old (“I want to come!”) behind and drove to the airport with my brother in my sister’s time of need. I had left in such a rush that I’d forgotten my driver’s license. It was not long after 9/11, and I had to cry to get on the plane without ID, but I finangled it. Coming home, we hit a snowstorm. My friend and her four-year-old drove over the White Mountains in a white-out to bring me home. At the crest of Franconia Notch, she pulled over. I got out to clean snow from the windshield and lights. No one else was on the road. Snow billowed through a freezing wind. I looked through the window at her son in his carseat between us. I had bought him a little toy, a hexagon of blue fluid with a yellow fish, and he was turning it around and around in his hand, so the fish would swim. It seemed like we were the last three souls on the planet. Such a long and treacherous way home to my little daughter and her twiggy braids. But my friend drove carefully in her red pickup. That story shook out into all’s-well, something that needs no bow-tie of a moral. Simply, all were saved. Our lives went on.

So many pieces of a life. On this Thanksgiving morning, how grateful I am to remain yet here, disease-and-treatment battered, broken by fate and my own rough actions. The terrain of the living.

… And last, I’m honored to have been nominated for a Pushcart Prize (a secret dream of mine) by Under the Sun for my essay “Weeds.”

How We Spend Our Time…

Sunday, I ask a friend to take a walk. It’s been a morning of housekeeping and writing chores, vacuuming and laundry, and the easiest thing would be to lie on my couch all afternoon and read. A light snow falls — pretty flakes and scant accumulation. As we walk, I pull off my hat and take off my mittens. It’s not the swimming season, not an afternoon where we meet at #10 Pond and talk about kids and work, about old parents and gardening, the loons calling and the sunlight thick with pollen. November is the honed-down season, stick and bone season, where your eye admires the landscape’s starkness. On these back roads, we pass farms, fields scattered with equipment, the shorn-down remains of last summer’s crops.

For so much of my life, I seemingly always had somewhere to be — and, raising kids, I probably did. I hurried to work and home to make dinner, or to pick up a daughter at school or a soccer game. Now, my girls are grown, with their own places to be; how hungrily I’m anticipating the abundance of our small family and apple pie this holiday. But this Sunday, I leave my post-it list on the kitchen table, check the woodstove dampers, and lace up my boots.

A year ago, I was for the first time in the Dartmouth-Hitchcock ER, in the trauma room with my daughters and the first oncologist I met. I was so new to the cancer patient world that I did not yet understand IVs and fluids and pain meds. That night, a surgeon told me I had to have surgery right now, immediately or I may not live, and I might not live through the surgery, either. It was the first time I had gone under in an operating room and woke in a dim recovery room and wondered, what now?

What now is the privilege of the living, and my god, I embrace that.

A year later, a few hours in the afternoon on a slippery dirt road. Later, I arrive home as twilight falls, the darkness so impenetrable in late autumn, back to my clean house and the cats who insist upon their dinner immediately, my solitary and sometimes un-solitary life, and what I’m making of my mortal time: fiercely writing, keeping the cats and myself fed, the hearth glowing, a holiday meal imminent. These earthly joys.

“… how we seek to spend our time may depend on how much time we perceive ourselves to have.” — Atul Gawande

Disease as Teacher.

About a year ago, a friend asked to borrow knitting needles, a request I almost certainly ignored as I could hardly walk up the stairs in my house, and forget the effort of opening the closet door and searching through my needles. A year ago, my family moved my bed downstairs, and I wondered, Well, is that? Am I now confined to one floor like an old woman? I was not, thankfully.

Half a year out from chemo and surgery, my family moved my bed back upstairs. The first morning I wake, I stand at the window looking down at the mock orange planted decades ago. In June, this giant bush is covered with small white blossoms, but in November, the bush is mostly sticks, save for a few withered leaves.

Standing there staring down, I felt suffused with profound grief. Almost immediately, I chastised myself. Why grieve when I survived a terrible illness? When this might have easily gone otherwise? And yet, grief.

Nearing the holidays, I think often of my mother who died not so long ago. She and I had years ago separated our lives for reasons both silly and profound. Only at the end of her life did I begin to have empathy for her and see her not merely as my mother but a woman in her own right. So that morning, thinking of her, my grief is for her absence, for what might have been between her and my daughters and myself. So many years I invited her to holiday meals, and all those years, she refused to join us. How I would love to invite her this year. Surviving cancer (thus far) broke me in so many ways, shoved me right up against the fragility of the world, revealed my own meager strength, but it also allowed me to grieve the loss upon loss that is not endemic to me but woven integrally through our mortal lives. Cancer empowered me to hold that grief without rage, to acknowledge simply what is.

But sadness, of course, is one variation of the complex symphony of our lives. Yesterday, walking along a hillside dirt road in the November sunlight, hat pulled off my head and in my hand, eyes on the spine of the Green Mountains in the distance freshly covered with snow, pure joy suffused me at simply being in the world. Six months ago, my companion had walked with me from my house to Main Street. It wasn’t at all certain to me that I could manage that short walk there and back. Now, the two of us moved quickly through the world, talking poetry and plans. How remarkable is that?

What if we embraced the messy, evolving, surprising, out-of-control happening that is life and reckoned with its proximity and relationship to death? What if, instead of being afraid of even talking about death, we saw our lives in some ways as preparation for it? What if we were taught to ponder it and reflect on it and talk about it and enter it and rehearse it and try it on? What if our lives were precious only up to a point? What if we held them loosely and understood that there were no guarantees? So that when you got sick you weren’t a stage but in a process? And cancer, just like having your heart broken, or getting a new job, or going to school, were a teacher? — Eve Ensler