Finding Jesus with the star sunglasses…

Home again and somewhat shocked to see an ice floe leering off my back roof, not exactly the size of A23a Iceberg, but approximating it….

I’m under strict orders to drink broth, eat saltines, lie on the couch and read — the last two I’ve been perfecting for months now. As for the rest of the order (this is the only thing you should be doing, Brett), I’ve been quietly breaking rules for years. Now, intimate with cancer and my mortality, I push myself to obey the orders, stick with the plan, follow the course precisely.

The winter thaws. The iceberg chips, shifts. I step outside and lean against my house in my down jacket that is now limp and beaten down, a sad thing that, this quarantined winter, I’ve used so little. How will my thousand words a day fit into these orders? A grant deadline looms. When will I put on my clean shoes and that linen sweater I knitted and return to work? A cardinal perches on the railing.

In those 48 hours I spent in the Dartmouth ER, in a beige isolation room, an upbeat nurse with amazing eyelashes occasionally stopped in to cheer me and whoever of my daughters was there. On the TV, which we never turned on, she pointed out a tiny orange plastic duck, and told us someone had placed small figurines all over the hospital. “I found Jesus,” she said. “I know that’s weird, to go around a hospital saying I’ve found the Man, but really…” She reached in her pocket and pulled out an inch-high plastic Jesus in a long robe, black curls, gold star sunglasses. He smiled so widely his teeth gleamed.

In that same room, I spied a second duck, brought the ducks home with me and lined them up on the bathroom mirror beside the wooden blue elephant from the Metropolitan Museum my daughter gave me. Two tiny things that arrived in my pocket, after a week of manifold things, after months of many manifold more. All day, it will rain, the warmth softening that iceberg on my roof, falling on the deck and breaking the wood, or not. If it’s broken, we’ll repair it this summer. If not, we’ll move on to the next thing.

And utterly seasonally inappropriate, here’s a Galway Kinnell poem I’ve been loving:

Blackberry Eating

I love to go out in late September
among the fat, overripe, icy, black blackberries
to eat blackberries for breakfast,
the stalks very prickly, a penalty
they earn for knowing the black art
of blackberry-making; and as I stand among them
lifting the stalks to my mouth, the ripest berries
fall almost unbidden to my tongue,
as words sometimes do, certain peculiar words
like strengths or squinched,
many-lettered, one-syllabled lumps,
which I squeeze, squinch open, and splurge well
in the silent, startled, icy, black language
of blackberry-eating in late September.

“You ask the sea, what can you promise me…”

About 17 years ago – in what doesn’t at all seem like another lifetime but part of these continuous decades I’m living, I walked in the dark from our sugarhouse to our house with my two children. Having worked all day, I’d received a reprieve from sugaring and carried up the dinner chili pot and dirty bowls and spoons. March, the nights are always cold, although sometimes a balmy breeze stirs up as a teasing promise of spring.

I threw the kids’ soaked snowsuits in the washing machine (in those days, the washing machine was always churning) and banked the wood stove. I was knitting something from yellow yarn. What this was – a child’s cap, a gift pair of mittens – I can no longer remember. But I remember reading Maurice Sendak’s Chicken Noodle Soup with Rice to my five-year-old, who slept beside me, profoundly as a child sleeps, her cheeks flushed rosy from a day outdoors. In these hours of making syrup, the children had brought in the mail from the driveway box.

The house was warm after hours in the unheated sugarhouse and also cold, since no one had fed the fire all day. I opened The New Yorker and read “March” by Louise Glück, a poem I probably quote every March in this blog. 17 years later, I’m still reading this poem, even as that kindergartener is now a college sophomore. There’s that cliché, in like a lamb, out like a lion, but March is often lion and lamb, all the time. Now, 17 years later, less impatient with spring’s maddening dawdle, I no longer read Maurice Sendak. Yet, unlike the triteness that when the children are grown, they’re flown, our family delves into my disease, digs hard at the stuff of what family means.

Still at Dartmouth, the nurse muses this morning about nine degree temperatures. March is a brutal tease and may leave more sharply than she arrives. But it’s March. The earth will thaw. The universe ambles along, dragging us, too.

You ask the sea, what can you promise me
and it speaks the truth; it says erasure….


The earth is like a drug now, like a voice from far away,
a lover or master. In the end, you do what the voice tells you.

Giving the slip….

Back again at Dartmouth, anyone entering my room dons a yellow gown, inadvertently hiding staff name tags. Two nurses enter yesterday and pause. My daughter and her boyfriend stand at my bed’s foot.

A nurse asks, Are you two the main medical team?

The three of us look at each other. In these days where not much has been funny at all, I’m tempted to roll with this, but my daughter jumps in and says, We’re family.

Oh, the nurse says, the Main Team. You looked so intent.

I add, Talking politics….

I’d been in the ER for two nights. The fact that I didn’t care is evidence of how lousy I felt. Due to my contagious infection, I’d been squirreled away. Wheeled through the hallways, I see how jammed this place is, people waiting in hallways, tucked into corners.

In these days, my daughters arrive with their cheery energy, with stories of their lives, their patience with me. I tell them my dream to start walking again…. A few warm days and I’m imagining the four feet of snow have vanished into mud. Not so.

My girls laugh. We’re going to have to Apple chip our mother so she doesn’t wander off….

No fear of my wandering in the (very near) future. But how I’m hungering for that. Just where, exactly, would I look for that chip? Under my boot sole? In the hem of my jacket? So I can give the slip when spring calls…..

Small town, rural hospital, snapshot, tinge of the seventies.

Driving into the Dartmouth Hitchcock Medical Center, the soaring buildings with their blue-green windows inspire confidence. They’re just so darn topnotch, cream of the crest, but (in the cancer journey) I also use the nearby hospital, too.

At the local hospital, not far from our house, we arrive again in the dark, the crimson EMERGENCY sign glowing. My daughter leaves me at the door and disappears around the corner to park. Inside, it’s the same receptionist, who nods a little sadly to see me again. In the waiting room, there’s no one but me and the Mountain Dew machine, my reflection in the windows.

Months into this cancer, I’m familiar with the process (don’t ever put your feet on the ER floor without shoes!) of questions and fluids and meds, a room far away from the day’s flu and Covid patients. Here’s what has changed: the ER doctor and I know each other now. My brilliant oncologist calls me and thinks aloud, what’s going on now? and orders an unusual set of tests. The ER doctor listens, nods, yes, let’s try that. My daughter’s boyfriend appears. The three of us talk about xc skiing and DOGE.

I’ve crammed my backpack with my laptop and notebook, two books, and a few clothes. In the middle of the night, I’m admitted. The woman who takes me upstairs knows a longtime friend of mine. She tells me about growing up in eastern Montana. Wherever you go, she tells me, the sky is infinite. Vermont’s so small, I feel like I could put it in my pocket.

Having lived in the West, too, I sometimes chafe against the pocket-sidedness of Vermont but mostly I love it. I keep thinking of this woman’s description for these few days again, in this rural hospital that’s about the size of double pocket in the front of hoodie sweatshirt. The census is so low here the rooms are all singles. Each of the rooms where I’ve stayed seems to be finished with unique salvaged materials. Beadboard cabinets in my last room, painted glossy cobalt, line one entire wall. In this room, the window is trimmed with wooden rosette corners, the sill plastic faux marble.

The medical world is hurry up and wait, but this hospital leans back towards the 1970s. I drink Shasta ginger ale and chat with the LNA about the cold and maple sugaring. Here’s what changed in me: I see these people throwing everything they have at me. The hospitalist who advised me, just a day after the cancer was discovered, do not stay in bed; be part of the world. The social worker stops in and asks my daughter about her job. The chaplain and I talk Dostoyevsky and cats. The nurses who have survived their own savage cancers share their stories and let me ask my questions. I have so many questions. The questions narrow down to one: how will I survive?

Then I ask to leave. My daughter stops at the pharmacy for another prescription and texts that it will be a few minutes. I open the door and lean against her winter-salted car. I’ve been at this crossroads in this unremarkable section of town so many times. Across the road was the department store Ames where I bought this daughter her first pink ball so we could roll it between us, the baby version of Catch. In the Price Chopper parking lot, I used to meet people to exchange boxes of wedding favors in leaf or heart-shaped bottles, tied up with ribbons, for checks. Afterwards, I’d take my girls into Price Chopper and buy ice cream. Behind the pharmacy is a home center, where I’ll never go again, after my ex-husband absconded with his customers’ money and stiffed the home center… how many tens of thousands of dollars I never knew. I’d severed that cord by then. On the other side of the crossroads stands the hardware store where the girls and I used our pandemic stimulus money to buy a glass table and red umbrella for our back porch. We use those things every summer, nearly everyday.

Behind Price Chopper, craggy Elmore Mountain looms, where I and the girls and their friends have camped and hiked and swam for years. The gentlest of snowfalls sifts down, swirling. My long-legged daughter crosses the lot, shades on despite the overcast sky, grinning.

Survivors.

Friends appear at my kitchen door with a rose and gossip. Midwinter, and I’m happy to keep my cats sprawled belly up before the glowing wood stove. The creatures sleep on the hot metal floor guard, their fur gathering ashes and birch bark curls. The snow bends down my thorny rose bushes. My daughter texts with news of a robin sighting. We talk about the usual — town meeting day approaching, the strangeness of an administration determined to chop apart the country. In Vermont, we do our usual thing: heads together, we strategize how to endure, how to keep our hearts open.

The snow is no fresh news. The unbroken cold (and hardly that awful — I’ve seen 40 below, albeit just once and that was enough 40 below for this lifetime) is no news, either. The sun begins to return, the days spreading out at either end, although the icicles remain icy, dripless daggers.

For me, this winter is the most profound of my life, surely the most sacred. I’ve had my own lovely share of winters with my newborns nestled against my chest, of small children delighted with swirling snowflakes, of long skis through woods. On the night before the Presidential election, an ER doctor gently told me I had cancer. Months later, I’ve immersed myself in the mundaneness of insurance and how to navigate the multi-levered medical system. Beyond that, my life slowed, often to simply enduring an afternoon, a night….

I’m adding to my draft of this post, a day later, now hospitalized again. Let there be no mistaking one of the world’s realities: infection is a mighty (and frequently fatal) force. Now, my daughter and I have this down: fluids and pain meds, with the curve now of puzzling out with the oncologist why I’m back. I contracted Giardia last summer from swimming in unclean water. Although I’ve been treated, the question lingers… has this bizarrely lingered?

But I wanted to return to the beginning of this short piece, about the kindness of friends and strangers. Lymphoma is my disease to bear, my bone marrow and veins and intestines and organs. But now, I — who so long saw myself as a lone running wolf — have been humbled to realize I’ve never been apart from the world, all this time. All around me, strangers and loved ones alike hold me together.

From my friend Jo, who sends me an audio poem every night:

“Survivor”
Adele Kenny

A jay on the fence preaches to a
squirrel. I watch the squirrel quiver,
the way squirrels do – its whole
body flickers. I’m not sure why this
reminds me of when I was five and

something died in our drain spout.
Feather or fur, I watched my father
dig it out, knowing (as a child knows)
how much life matters. I have seen how
easily autumn shakes the yellow leaves,

how winter razes the shoals of heaven.
I have felt love’s thunder and moan, and
had my night on the wild river. I have
heard the cancer diagnosis with my name
in it. I know what mercy is and isn’t.

Morning breaks from sparrows’ wings
(life’s breezy business), and I’m still here,
still in love with the sorrows, the joys –
days like this, measured by memory, the
ticking crickets, the pulse in my wrist.

Unsurpassable February.

For days, the forecast has trumpeted news of impending snow this weekend; still, sunlight floods into our kitchen this morning. Sure, it’s a few degrees above zero, nothing to sneeze at, but the icicles gleam, skinny stalactites, proof of this week’s warming. A crimson cardinal perches on the feeder.

We are in deep midwinter, the annual mark of collective cabin fever, of generalized bitching, of snow pile comparisons and, in precise detail, what is now hidden from view. It’s the season for skiing, for chocolate, for mooning over seed catalogs.

In my own cancer world, I mark the merge of days and nights in my own way, writing my thousand words a day (sometimes more, sometimes not at all), as my own shepherd’s crook to right my crooked self. In the afternoons, spent, I read and read, returning to that great pleasure of my youth. Around me, my family shifts and jostles, their own lives crammed full with their living, with jobs and classes and loves or longed-for loves. My daughters call me with stories about a grapefruit drink that I vow to drink this July and August, over smashed ice, my bare feet on the grass or maybe a sandy shore of Lake Champlain. It’s the time of year when we long for rain drops on our cheeks and clotting in our eyelashes. But February rain holds ice and sleet, not the green wash of spring, the scent of soaked earth, the tang of emerging garlic.

Every day, I talk with my old father in New Mexico. He asks, Are you sticking to the plan?

I am, I assure him, holding to the course of what the medical realm prescribes, meds and applesauce and so much water — but the here’s the refreshing, liberating, unbelievable thing: there’s no bones with anyone at all in the cancer world that this is a hard dirty blow. So seize this opportunity, turn your life inside out, remake it anew. Make no excuses. Take.

Driving, again driving in the dark to Dartmouth, the full moon hung over our shoulders the entire journey, a creamy light, brilliant on new snow, unsurpassable.

And here’s a poem from Ginger Andrews I used to read in my shut-in mothering-toddler days….

The Cure

Lying around all day
with some strange new deep blue
weekend funk, I’m not really asleep
when my sister calls
to say she’s just hung up
from talking with Aunt Bertha
who is 89 and ill but managing
to take care of Uncle Frank
who is completely bed ridden.
Aunt Bert says
it’s snowing there in Arkansas,
on Catfish Lane, and she hasn’t been
able to walk out to their mailbox.
She’s been suffering
from a bad case of the mulleygrubs.
The cure for the mulleygrubs,
she tells my sister,
is to get up and bake a cake.
If that doesn’t do it, put on a red dress.